Abu-Yaghi Nakhleh, Meqbil Jehad, Sharif Zuhair, Helwa Layth, Al-Imam Mahmood, Abumanneh Zeina
Department of Special Surgery, Ophthalmology Division, School of Medicine, the University of Jordan, Amman, Jordan.
Low Vision Private Practice, Amman, Jordan.
Clin Optom (Auckl). 2022 Apr 15;14:67-74. doi: 10.2147/OPTO.S364010. eCollection 2022.
This project aims to describe the characteristics of patients with visual impairment referred from a tertiary academic hospital in Jordan for a comprehensive low vision evaluation and to study its impact on their functional needs.
A retrospective analysis of the records of 108 patients from the ophthalmology clinic at Jordan University Hospital over the period from January 2014 to December 2018 was performed. Gathered information included age, gender, clinical diagnosis, family history of ocular disease, and type of low vision aid prescribed and its impact on patients' functional needs.
The mean age was 44.64 years (range 4-88). Most participants were in the 19-60 years age group (50.0%). Fifty percent of the participants were the offspring of consanguineous marriages. The main cause of visual impairment in this cohort was retinitis pigmentosa, followed by diabetic retinopathy. The majority of low vision aids were prescribed for near distance tasks, and reading spectacles were the most prescribed visual aid. Eighty-nine percent of patients reported functional improvement and retained their visual aids upon follow-up.
Retinitis pigmentosa was the main cause of visual impairment in this cohort of patients referred from a tertiary academic hospital for low vision assessment. We report a consanguinity rate of 50%. The overwhelming majority of patients reported functional improvement and retained their visual aids upon follow-up. Awareness and integration of low vision services into a multidisciplinary approach and improving referral protocols is essential to better address the needs of patients with visual impairment. Familial counselling regarding consanguineous marriages and emerging research to treat inherited retinal diseases should be pursued.
本项目旨在描述从约旦一家三级学术医院转诊来进行全面低视力评估的视力障碍患者的特征,并研究其对患者功能需求的影响。
对2014年1月至2018年12月期间约旦大学医院眼科门诊108例患者的记录进行回顾性分析。收集的信息包括年龄、性别、临床诊断、眼部疾病家族史、所开低视力辅助器具的类型及其对患者功能需求的影响。
平均年龄为44.64岁(范围4 - 88岁)。大多数参与者在19 - 60岁年龄组(50.0%)。50%的参与者是近亲结婚的后代。该队列中视力障碍的主要原因是色素性视网膜炎,其次是糖尿病性视网膜病变。大多数低视力辅助器具是为近距离任务开具的,阅读眼镜是开具最多的视觉辅助器具。89%的患者报告功能有改善,随访时保留了他们的视觉辅助器具。
色素性视网膜炎是从一家三级学术医院转诊来进行低视力评估的这组患者视力障碍的主要原因。我们报告的近亲结婚率为50%。绝大多数患者报告功能有改善,随访时保留了他们的视觉辅助器具。将低视力服务纳入多学科方法并提高转诊方案的意识至关重要,以便更好地满足视力障碍患者的需求。应开展关于近亲结婚的家庭咨询以及治疗遗传性视网膜疾病的新兴研究。