Region Västra Götaland, Sahlgrenska University Hospital, Queen Silvia Children´s Hospital, Gothenburg, Sweden.
Institute of Health and Care Sciences, and University of Gothenburg Centre for Person-Centred Care (GPCC), Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
J Child Health Care. 2023 Dec;27(4):654-666. doi: 10.1177/13674935221089746. Epub 2022 Apr 22.
Research with childhood cancer has progressed greatly in recent years, resulting in much improved treatment that is more intensive. However, with this new treatment children often experience negative symptoms, and research shows that nausea is a symptom that most affects them. Pictorial support in person-centred care for children (PicPecc) is a digital picture-based tool for children who undergo treatment due to their cancer diagnosis and helps them more effectively communicate and self-report their symptoms and emotions. The aim of the study was to investigate children's experience of (i) using mHealth in nausea management and (ii) their acceptability of using an application (App). Semi-structured interviews were conducted with eight children aged five to fifteen years. Data were analysed with qualitative content analysis. The findings were presented in three categories: 1) Communicating feelings, 2) Playfulness generated in motivation and 3) App adaptable to children's capabilities. Using an App contributed to new opportunities for the children to participate in their care. They experienced their treatment in different ways and used different strategies to manage and distract themselves from their symptoms. Using the PicPecc App can increase healthcare staff's understanding of how children experience nausea when they undergo chemotherapy.
近年来，儿童癌症研究取得了很大进展，治疗方法更加密集，效果也明显改善。然而，随着这种新的治疗方法的应用，孩子们经常会出现负面症状，研究表明，恶心是最影响他们的症状之一。以儿童为中心的关怀中的图画支持（PicPecc）是一种针对因癌症诊断而接受治疗的儿童的数字图片工具，有助于他们更有效地交流和自我报告症状和情绪。该研究的目的是调查儿童在（i）使用移动医疗管理恶心和（ii）他们对使用应用程序的接受程度方面的体验。对 8 名 5 至 15 岁的儿童进行了半结构化访谈。使用定性内容分析对数据进行分析。研究结果呈现为三个类别：1）表达感受，2）激发动机的趣味性，3）适应儿童能力的应用程序。使用应用程序为孩子们参与治疗提供了新的机会。他们以不同的方式体验治疗，并使用不同的策略来管理和分散自己对症状的注意力。使用 PicPecc 应用程序可以增加医护人员对儿童在接受化疗时经历恶心的理解。
