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在中低收入国家对自闭症谱系障碍儿童进行筛查:来自伊拉克库尔德斯坦地区的经验。

Screening Children for Autism Spectrum Disorders in Low- and Middle-Income Countries: Experiences from the Kurdistan Region of Iraq.

机构信息

Institute of Nursing Research, Ulster University, Newtownabbey BT37 0QB, Northern Ireland, UK.

Bahoz Centre for Children with Developmental Disabilities, Erbil 44000, The Kurdistan Region of Iraq, Iraq.

出版信息

Int J Environ Res Public Health. 2022 Apr 11;19(8):4581. doi: 10.3390/ijerph19084581.

Abstract

Screening tools for the early identification of developmental disabilities are strongly advised, yet culturally valid tools are not readily available for use in low- and middle-income countries. The present study describes the context and the processes used to develop a suitable screening procedure for use in the Kurdistan region of Iraq. This was based on an autism rating scale-GARS-3-developed in the USA for use primarily with children's parents. It was administered to three groups of children: those with a pre-existing diagnosis of ASD; those with a confirmed diagnosis of a developmental disability; and those who were typically developing-735 participants in all. The 10 items from the 58 items in the full GARS-3 scale that best discriminated the three groups of children were identified. Subsequent analysis confirmed that the ten-item summary scores had reasonable internal reliabilities, with a good specificity and sensitivity in distinguishing children with ASD from those that were typically developing but less so for children with other developmental disabilities. The study confirms the universality of autism symptoms but also the different emphasis Kurdish parents may place on them. Nevertheless, screening procedures need to be developed in the context of support services that can undertake follow-up diagnostic assessments and provide suitable interventions for use by parents to promote their child's development. The study provides an example of how this can be possible in low- and middle-income countries.

摘要

强烈建议使用早期识别发育障碍的筛查工具,但在中低收入国家,没有现成的文化适用工具可供使用。本研究描述了在伊拉克库尔德地区开发合适的筛查程序的背景和过程。这是基于在美国开发的自闭症评定量表-GARS-3 进行的,主要用于儿童的父母。它被用于三组儿童:有 ASD 预先诊断的儿童;有发育障碍确诊诊断的儿童;和那些发育正常的儿童-共有 735 名参与者。从完整的 GARS-3 量表的 58 个项目中确定了 10 个最能区分三组儿童的项目。随后的分析证实,十项综合评分具有合理的内部可靠性,在区分自闭症儿童和发育正常的儿童方面具有较好的特异性和敏感性,但在区分有其他发育障碍的儿童方面则较差。该研究证实了自闭症症状的普遍性,但也证实了库尔德父母可能对这些症状的不同重视。然而,筛选程序需要在能够进行后续诊断评估并为父母提供适当干预措施以促进孩子发展的支持服务的背景下进行开发。该研究提供了一个在中低收入国家如何实现这一目标的例子。

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