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了解患者在线查看自身放射影像后的体验、意见及采取的行动:基于网络的调查。

Understanding Patient Experiences, Opinions, and Actions Taken After Viewing Their Own Radiology Images Online: Web-Based Survey.

作者信息

Norris Evan C, Halaska Ciarra, Sachs Peter B, Lin Chen-Tan, Sanfilippo Kate, Honce Justin M

机构信息

Department of Radiology, University of Colorado Anschutz Medical Campus, Aurora, CO, United States.

UCHealth, Aurora, CO, United States.

出版信息

JMIR Form Res. 2022 Apr 25;6(4):e29496. doi: 10.2196/29496.


DOI:10.2196/29496
PMID:35468086
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9086874/
Abstract

BACKGROUND: The ability for patients to directly view their radiology images through secure electronic portals is rare in the American health care system. We previously surveyed patients within our health system and found that a large majority wanted to view their own radiology images online, and we have since implemented this new feature. OBJECTIVE: We aim to understand patient experiences, opinions, and actions taken after viewing their own radiology images online. METHODS: We emailed a web-based survey to patients who recently viewed their radiology images via our electronic patient portal. RESULTS: We sent 1825 surveys to patients and received 299 responses (response rate 16.4%). Patients reported a favorable experience (258/299, 86.3% agree) viewing their radiology images online. Patients found value in reading their radiology reports (288/299, 96.3% agree) and viewing their images (267/299, 89.3% agree). Overall, patients felt that accessing and viewing their radiology images online increased their understanding of their medical condition (258/299, 82.9%), made them feel more in control and reassured (237/299, 79.2% and 220/299, 73.6%, respectively), and increased levels of trust (214/299, 71.6%). Only 6.4% (19/299) of the patients indicated concerns with finding errors, 6.4% (19/299) felt that viewing their images online made them worry more, and 7% (21/299) felt confused when viewing their images online. Of patients who viewed their images online, 45.2% (135/299) took no action with their images, 32.8% (98/299) saved a copy for their records, 25.4% (76/299) shared them with their doctor, and 14.7% (44/299) shared them with another doctor for a second opinion. A total of 9 patients (3%) shared their radiology images on Facebook, Instagram, or both, primarily to inform family and friends. Approximately 10.4% (31/299) of the patients had questions about their radiology images after viewing them online, with the majority (20/31, 65%) seeking out a doctor, and far fewer (5/31, 16%) choosing to ask a family member about their images. Finally, respondents viewed their images online using 1 or more devices, including computers, smartphones, tablets, or a combination of these devices. Approximately 26.7% (103/385) of the responses noted technical difficulties, with the highest incidence rate occurring with smartphones. CONCLUSIONS: We report the first known survey results from patients who viewed their own radiology images through a web-based portal. Patients reported high levels of satisfaction and increased levels of trust, autonomy, reassurance, and medical understanding. Only a small minority of patients expressed anxiety or confusion. We suggest that patient access to radiology images, such as patient access to radiology reports, is highly desired by patients and is operationally practical. Other health care institutions should consider offering patients access to their radiology images online in the pursuit of information transparency.

摘要

背景:在美国医疗系统中,患者通过安全的电子门户直接查看自己的放射影像的情况很少见。我们之前对我们医疗系统内的患者进行了调查,发现绝大多数患者希望在线查看自己的放射影像,此后我们实施了这一新功能。 目的:我们旨在了解患者在线查看自己的放射影像后的体验、意见及采取的行动。 方法:我们通过电子邮件向最近通过我们的电子患者门户查看了放射影像的患者发送了一份基于网络的调查问卷。 结果:我们向患者发送了1825份调查问卷,收到299份回复(回复率16.4%)。患者报告称在线查看放射影像的体验良好(258/299,86.3%表示同意)。患者认为阅读放射影像报告(288/299,96.3%表示同意)和查看影像(267/299,89.3%表示同意)有价值。总体而言,患者觉得在线获取和查看放射影像增强了他们对自身病情的了解(258/299,82.9%),让他们感觉更能掌控情况且更安心(分别为237/299,79.2%和220/299,73.6%),并提升了信任度(214/299,71.6%)。只有6.4%(19/299)的患者表示担心发现错误,6.4%(19/299)觉得在线查看影像让他们更担心,7%(21/299)在在线查看影像时感到困惑。在在线查看影像的患者中,45.2%(135/299)未对影像采取任何行动,32.8%(98/299)保存了一份副本留作记录,25.4%(76/299)与他们的医生分享了影像,14.7%(44/299)与另一位医生分享影像以获取第二种意见。共有9名患者(3%)在脸书、照片墙或两者上分享了他们的放射影像,主要是为了告知家人和朋友。约10.4%(31/299)的患者在在线查看影像后对其放射影像有疑问,其中大多数(20/31,65%)向医生咨询,而选择向家庭成员询问影像情况的则少得多(5/31,16%)。最后,受访者使用1种或多种设备在线查看影像,包括电脑、智能手机、平板电脑或这些设备的组合。约26.7%(103/385)的回复提到了技术困难,其中智能手机的发生率最高。 结论:我们报告了首批已知的关于患者通过基于网络的门户查看自己放射影像的调查结果。患者报告了高度的满意度以及信任度、自主性、安心感和医学理解的提升。只有一小部分患者表示焦虑或困惑。我们建议,患者获取放射影像,就如同患者获取放射影像报告一样,是患者非常渴望的,并且在操作上是可行的。其他医疗机构应考虑为患者提供在线获取其放射影像的服务,以追求信息透明度。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6665/9086874/9115c650ffa1/formative_v6i4e29496_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6665/9086874/9115c650ffa1/formative_v6i4e29496_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/6665/9086874/9115c650ffa1/formative_v6i4e29496_fig1.jpg

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本文引用的文献

[1]
Improving Patient Access to Medical Images by Integrating an Imaging Portal With the Electronic Health Record Patient Portal.

J Am Coll Radiol. 2021-6

[2]
Patient Access to an Online Portal for Outpatient Radiological Images and Reports: Two Years' Experience.

J Digit Imaging. 2020-12

[3]
Patient satisfaction and survey response in 717 hospital surveys in Switzerland: a cross-sectional study.

BMC Health Serv Res. 2020-3-2

[4]
Patient Attitudes About Viewing Their Radiology Images Online: Preintervention Survey.

J Med Internet Res. 2019-7-18

[5]
Measurement Under the Microscope: High Variability and Limited Construct Validity in Emergency Department Patient-Experience Scores.

Ann Emerg Med. 2017-12-18

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J Am Med Inform Assoc. 2017-9-1

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Differences in Access to and Preferences for Using Patient Portals and Other eHealth Technologies Based on Race, Ethnicity, and Age: A Database and Survey Study of Seniors in a Large Health Plan.

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