传统知情同意如何损害学习型医疗系统中的包容性：来自乌得勒支心血管队列的经验教训。 - Suppr | 超能文献

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How traditional informed consent impairs inclusivity in a learning healthcare system: lessons learned from the Utrecht Cardiovascular Cohort.传统知情同意如何损害学习型医疗系统中的包容性：来自乌得勒支心血管队列的经验教训。

J Clin Epidemiol. 2022 Sep;149:190-194. doi: 10.1016/j.jclinepi.2022.04.025. Epub 2022 Apr 30.

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Asking informed consent may lead to significant participation bias and suboptimal cardiovascular risk management in learning healthcare systems.在学习型医疗保健系统中，获得知情同意可能导致重大的参与偏见和心血管风险管理效果不佳。

BMC Med Res Methodol. 2023 Apr 22;23(1):98. doi: 10.1186/s12874-023-01924-6.

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Caregiver Perspectives on Informed Consent for a Pediatric Learning Healthcare System Model of Care.照顾者对儿科学习型医疗保健系统护理模式的知情同意的看法。

AJOB Empir Bioeth. 2021 Apr-Jun;12(2):92-100. doi: 10.1080/23294515.2020.1836066. Epub 2020 Oct 26.

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Tuning the Ethical Strings of the Learning Health System.调整学习型健康系统的道德琴弦。

J Clin Oncol. 2019 Dec 1;37(34):3176-3178. doi: 10.1200/JCO.19.02448. Epub 2019 Oct 21.

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Learning to Regulate Learning Healthcare Systems.学习规范学习型医疗系统。

Camb Q Healthc Ethics. 2019 Apr;28(2):369-377. doi: 10.1017/S0963180119000203.

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The learning health system: trial design and participant consent in comparative effectiveness research.学习型健康系统：比较效果研究中的试验设计与参与者同意

Eur Heart J. 2019 Apr 14;40(15):1236-1240. doi: 10.1093/eurheartj/ehy235.

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Citizens, Research Ethics Committee Members and Researchers' Attitude Toward Information and Consent for the Secondary Use of Health Data: Implications for Research Within Learning Health Systems.公民、研究伦理委员会成员和研究人员对健康数据二次使用的信息和同意的态度：对学习型卫生系统内研究的影响。

J Empir Res Hum Res Ethics. 2021 Jul;16(3):165-178. doi: 10.1177/1556264621992214. Epub 2021 Mar 12.

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Computers, confounding, clusters, consent, cost, COVID and consultation: how the Health and Disability Code impedes the learning health system.计算机、混淆因素、群组、同意、成本、新冠疫情与会诊：《健康与残疾法》如何阻碍学习型健康系统的发展。

N Z Med J. 2020 Sep 25;133(1522):138-143.

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Informed consent to healthcare interventions in people with learning disabilities--an integrative review.学习障碍者医疗干预的知情同意——一项综合综述。

J Adv Nurs. 2008 Dec;64(6):549-63. doi: 10.1111/j.1365-2648.2008.04829.x.

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Informed consent affects prevalence estimates in an epidemiological study on chronic pruritus: lessons learned from a pretest.在一项关于慢性瘙痒的流行病学研究中，知情同意影响患病率估计：预试验的经验教训。

Ann Epidemiol. 2009 Oct;19(10):754-6. doi: 10.1016/j.annepidem.2009.06.007. Epub 2009 Aug 21.

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Comparison of the Response to an Electronic Versus a Traditional Informed Consent Procedure in Terms of Clinical Patient Characteristics: Observational Study.电子知情同意程序与传统知情同意程序在临床患者特征方面的反应比较：观察性研究。

J Med Internet Res. 2024 Jul 11;26:e54867. doi: 10.2196/54867.

2

Continuous quality improvement: reducing informed consent form signing errors.持续质量改进：减少知情同意书签署错误。

BMC Med Ethics. 2023 Aug 4;24(1):59. doi: 10.1186/s12910-023-00933-w.

3

Asking informed consent may lead to significant participation bias and suboptimal cardiovascular risk management in learning healthcare systems.