Cho Eunji, Dietrich Mary S, Friedman Debra L, Gilmer Mary Jo, Gerhardt Cynthia A, Given Barbara A, Hendricks-Ferguson Verna L, Hinds Pamela S, Akard Terrah Foster
School of Nursing, 5718Vanderbilt University, Nashville, TN, USA.
School of Medicine, 5718Vanderbilt University, Nashville, TN, USA.
Am J Hosp Palliat Care. 2023 Jan;40(1):34-42. doi: 10.1177/10499091221100809. Epub 2022 May 10.
Recurrent or refractory cancer often results in substantial and extensive physical, emotional, psychosocial, and spiritual burdens for children and their families. However, the therapeutic benefits of legacy interventions in children with recurrent or refractory cancer have been examined only recently, with limited attention to specific effects on children's coping abilities.
The purpose of this study was to determine the effects of a digital storytelling-legacy intervention on the adaptive coping of children with recurrent or refractory cancer.
This study used a 2-arm randomized, waitlist-controlled trial design. A total of 150 children with recurrent or refractory cancer and their parents were recruited via Facebook advertisements.
The analysis sample included 92 dyads (35-intervention group, 57-control group). The legacy intervention showed small and statistically nonsignificant effects on primary-control and disengagement coping strategies among children with recurrent or refractory cancer.
Legacy interventions using readily accessible digital storytelling have the potential to enhance the adaptive coping skills among children with recurrent or refractory cancer. Further research should determine how to enhance interventions tailored to this population to optimize the benefits.
复发性或难治性癌症常常给儿童及其家庭带来巨大且广泛的身体、情感、心理社会和精神负担。然而，针对复发性或难治性癌症患儿的遗产干预措施的治疗效果直到最近才得到研究，且对其对儿童应对能力的具体影响关注有限。
本研究旨在确定数字故事讲述-遗产干预对复发性或难治性癌症患儿适应性应对的影响。
本研究采用双臂随机、等待列表对照试验设计。通过脸书广告招募了总共150名患有复发性或难治性癌症的儿童及其父母。
分析样本包括92对（35对干预组，57对对照组）。遗产干预对复发性或难治性癌症患儿的主要控制和脱离应对策略显示出微小且无统计学意义的影响。
使用易于获取的数字故事讲述的遗产干预措施有可能增强复发性或难治性癌症患儿的适应性应对技能。进一步的研究应确定如何加强针对该人群的干预措施以优化益处。
