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炎症性肠病常规临床实践中的数字患者报告结局:临床医生视角

Digital patient-reported outcomes in inflammatory bowel disease routine clinical practice: the clinician perspective.

作者信息

Nielsen Amalie Søgaard, Appel Charlotte W, Larsen Birgit Furstrand, Hanna Lisa, Kayser Lars

机构信息

Department of Public Health, Section of Health Service Research, University of Copenhagen, Øster Farimagsgade 5, 1014, Copenhagen K, Denmark.

School of Health and Social Development, Deakin University, Geelong, Australia.

出版信息

J Patient Rep Outcomes. 2022 May 19;6(1):52. doi: 10.1186/s41687-022-00462-x.

DOI:10.1186/s41687-022-00462-x
PMID:35587297
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9117590/
Abstract

BACKGROUND

Use of digital health services, such as digital patient-reported outcomes, depends on many different human factors as well as digital design solutions. One factor is clinicians' attitude towards the system, their reasoning behind the using system and their perceptions of patients' ability to engage with digital health systems. This study aimed to explore hospital clinicians' attitudes towards digital patient-reported outcomes used in the routine care and treatment of inflammatory bowel disease, and to explore the potential role of clinicians' attitudes in influencing patients' use of digital patient-reported outcomes.

RESULTS

Twelve clinicians using digital patient-reported outcome assessments in the care of inflammatory bowel disease were interviewed about their experiences of, and perspectives on, using this service. Most participants supported the use of digital patient-reported outcome assessments in the care of most patients. Participants reported that most patients found the digital solution easy to use. They perceived digital patient-reported outcomes to have three main purposes: prioritising resources; improving patients' quality of life; and improving quality of care. The patient-clinician relationship was of great importance to participants. Participants varied in their intention to use digital PRO, as some viewed the system as a positive but optional add-on for patients, whilst others intended to use the system with all eligible patients.

CONCLUSION

Clinicians' general support of using digital patient-reported outcomes might facilitate their use among patients with inflammatory bowel disease. The participants saw benefits in doing so for patients, clinicians and the wider health service. Clinicians' attitudes towards the use of digital PRO in the care of their patients may influence patients' uptake of health service.

摘要

背景

数字健康服务的使用,如数字患者报告结局,取决于许多不同的人为因素以及数字设计解决方案。其中一个因素是临床医生对该系统的态度、他们使用该系统的理由以及他们对患者参与数字健康系统能力的看法。本研究旨在探讨医院临床医生对炎症性肠病常规护理和治疗中使用的数字患者报告结局的态度,并探讨临床医生态度在影响患者使用数字患者报告结局方面的潜在作用。

结果

对12名在炎症性肠病护理中使用数字患者报告结局评估的临床医生进行了访谈,了解他们使用这项服务的经历和看法。大多数参与者支持在大多数患者的护理中使用数字患者报告结局评估。参与者报告说,大多数患者认为数字解决方案易于使用。他们认为数字患者报告结局有三个主要目的:优化资源配置;改善患者生活质量;提高护理质量。患者与临床医生的关系对参与者非常重要。参与者使用数字患者报告结局的意愿各不相同,一些人将该系统视为对患者积极但非必需的附加项,而另一些人则打算让所有符合条件的患者使用该系统。

结论

临床医生对使用数字患者报告结局的普遍支持可能会促进其在炎症性肠病患者中的使用。参与者认为这样做对患者、临床医生和更广泛的医疗服务都有好处。临床医生对在患者护理中使用数字患者报告结局的态度可能会影响患者对医疗服务的接受程度。

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本文引用的文献

1
Patient perspectives on digital patient reported outcomes in routine care of inflammatory bowel disease.炎症性肠病常规护理中患者对数字化患者报告结局的看法。
J Patient Rep Outcomes. 2021 Sep 17;5(1):92. doi: 10.1186/s41687-021-00366-2.
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A review of the barriers to using Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs) in routine cancer care.使用患者报告结局(PROs)和患者报告结局测量(PROMs)在常规癌症护理中的障碍综述。
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Patients' reasons for non-use of digital patient-reported outcome concepts: A scoping review.患者不使用数字患者报告结局概念的原因:范围综述。
Health Informatics J. 2020 Dec;26(4):2811-2833. doi: 10.1177/1460458220942649. Epub 2020 Jul 30.
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The development of PROmunication: a training-tool for clinicians using patient-reported outcomes to promote patient-centred communication in clinical cancer settings.PROmunication的开发:一种供临床医生使用患者报告结果以促进临床癌症环境中以患者为中心沟通的培训工具。
J Patient Rep Outcomes. 2020 Feb 11;4(1):10. doi: 10.1186/s41687-020-0174-6.
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Patient-reported outcome measures in the interaction between patient and clinician - a multi-perspective qualitative study.患者与临床医生互动中的患者报告结局测量——一项多视角定性研究。
J Patient Rep Outcomes. 2020 Jan 9;4(1):3. doi: 10.1186/s41687-019-0170-x.
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Patient-initiated versus fixed-interval patient-reported outcome-based follow-up in outpatients with epilepsy: a pragmatic randomized controlled trial.癫痫门诊患者中基于患者报告结局的患者自主启动随访与固定间隔随访:一项实用随机对照试验
J Patient Rep Outcomes. 2019 Sep 13;3(1):61. doi: 10.1186/s41687-019-0151-0.
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Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review.数字健康应用在炎症性肠病临床护理中的应用:范围综述
J Med Internet Res. 2019 Aug 19;21(8):e14630. doi: 10.2196/14630.
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How do patient reported outcome measures (PROMs) support clinician-patient communication and patient care? A realist synthesis.患者报告结局测量指标(PROMs)如何支持临床医生与患者之间的沟通及患者护理?一项实在论综合分析。
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Proposing a Transactional Model of eHealth Literacy: Concept Analysis.提出电子健康素养的交易模型:概念分析。
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PRO-based follow-up as a means of self-management support - an interpretive description of the patient perspective.基于PRO的随访作为自我管理支持的一种手段——对患者观点的解释性描述
J Patient Rep Outcomes. 2018 Sep 5;2:38. doi: 10.1186/s41687-018-0067-0. eCollection 2017.