Wanjagua Rachael, Hepburn Stevie-Jae, Faragher Rhonda, John Shaji Thomas, Gayathri K, Gitonga Margaret, Meshy Cecylia Francis, Miranda Lucena, Sindano Devis
Department of Disability and Human Development University of Illinois at Chicago Chicago Illinois USA.
School of Education The University of Queensland Brisbane Queensland Australia.
J Policy Pract Intellect Disabil. 2022 Mar;19(1):72-85. doi: 10.1111/jppi.12415. Epub 2022 Mar 30.
COVID-19 has very publicly had profound impacts on the health system of every country in the world. Over 4.5 million people have lost their lives. School closures worldwide where up to 1.6 billion of the world's children have been out of school, are also prominent in world news. Behind these public impacts are the families. In this paper, we focus on the experiences of families with people with intellectual and developmental disabilities (IDD) through analysis of two data sets: the emerging research literature and contributions from our author team who have lived experience of intellectual and developmental disability in the context of COVID-19. From these two data sets, we discern five themes of the impact of the pandemic: on health, on education, on services and supports, on families and finally on relationships beyond the family. We conclude with lessons from those living with intellectual and developmental disabilities, the carers and the individuals themselves to draw implications for supporting families in the context of disability during future pandemics.
新型冠状病毒肺炎（COVID-19）已在全球范围内对世界各国的卫生系统产生了极其显著的影响。超过450万人失去了生命。全球范围内学校停课，多达16亿儿童失学，这也成为世界新闻的突出内容。在这些公共影响的背后是家庭。在本文中，我们通过分析两个数据集来关注有智力和发育障碍（IDD）患者的家庭经历：新兴的研究文献以及我们作者团队的贡献，他们在COVID-19背景下有智力和发育障碍的生活经历。从这两个数据集中，我们识别出疫情影响的五个主题：对健康的影响、对教育的影响、对服务与支持的影响、对家庭的影响以及最后对家庭以外人际关系的影响。我们以智力和发育障碍患者、照料者及患者本人的经验教训作为结论，以得出在未来疫情期间为残疾背景下的家庭提供支持的启示。
