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新冠疫情期间对成年智障人士的远程支持:来自照料者的视角

Remote Support for Adults with Intellectual Disability During COVID-19: From a Caregiver's Perspective.

作者信息

Wos Klaudia, Kamecka-Antczak Celina, Szafrański Mateusz

机构信息

Interdisciplinary Doctoral School of Social Sciences Nicolaus Copernicus University in Toruń Torun Poland.

Faculty of Philosophy and Social Sciences Nicolaus Copernicus University in Toruń Torun Poland.

出版信息

J Policy Pract Intellect Disabil. 2021 Dec;18(4):279-285. doi: 10.1111/jppi.12385. Epub 2021 Jun 15.

Abstract

The reality of people with ID changed during the pandemic COVID-19. Most institutions supporting people with ID switched to remote work. This required some major adaptation to these individuals' new realities, their immediate families, and facility staff. Supporting and monitoring the quality of life of individuals with disabilities and their family members during a crisis is an essential topic of current research. This research project aimed to explore the experiences of parents of adults with ID in relation to remote support provided by public support agencies. In a qualitative study, the authors used semistructured individual interviews with caregivers of people with ID. Data analysis distinguished the following categories: parents as therapists, organization difficulties, material problems, lack of social contacts, positive solutions, and difficult behavior. The results show the difficulties of parents in balancing professional, domestic, and supporting tasks. The study was the first in Poland to report on the qualitative assessment of remote support for people with ID during COVID-19. Further, more extensive research is needed to search for solutions that respect the rights of people with disabilities to professional support.

摘要

在新冠疫情期间,智力残疾人士的实际情况发生了变化。大多数为智力残疾人士提供支持的机构转向了远程工作。这就需要对这些人的新现实情况、他们的直系亲属以及机构工作人员进行一些重大调整。在危机期间支持和监测残疾人士及其家庭成员的生活质量是当前研究的一个重要课题。这个研究项目旨在探索智力残疾成年人士的父母在接受公共支持机构提供的远程支持方面的经历。在一项定性研究中,作者对智力残疾人士的照料者进行了半结构化的个人访谈。数据分析区分出了以下几类:父母作为治疗师、组织困难、物质问题、缺乏社交联系、积极的解决方案以及困难行为。结果表明父母在平衡专业、家庭和支持任务方面存在困难。该研究是波兰首个关于新冠疫情期间对智力残疾人士远程支持的定性评估报告。此外,需要进行更广泛的研究以寻找尊重残疾人士获得专业支持权利的解决方案。

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