• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

相似文献

1
Remote Support for Adults with Intellectual Disability During COVID-19: From a Caregiver's Perspective.新冠疫情期间对成年智障人士的远程支持:来自照料者的视角
J Policy Pract Intellect Disabil. 2021 Dec;18(4):279-285. doi: 10.1111/jppi.12385. Epub 2021 Jun 15.
2
Specific needs of families of young adults with profound intellectual disability during and after transition to adulthood: What are we missing?重度智力残疾的青年成年人在向成年期过渡期间及之后其家庭的特殊需求:我们遗漏了什么?
Res Dev Disabil. 2017 Jul;66:16-26. doi: 10.1016/j.ridd.2017.05.001. Epub 2017 May 31.
3
The Care of Adults with Intellectual Disabilities: Informal (Family) Caregivers' Perspectives.成年人智力残疾的照护:非正规(家庭)照护者的视角。
Int J Environ Res Public Health. 2022 Nov 24;19(23):15622. doi: 10.3390/ijerph192315622.
4
Improving support and planning ahead for older people with learning disabilities and family carers: a mixed-methods study.改善对有学习障碍的老年人及其家庭照顾者的支持与提前规划:一项混合方法研究。
Health Soc Care Deliv Res. 2024 Jun;12(16):1-161. doi: 10.3310/MTHW2644.
5
The health and well-being of caregivers of children with cerebral palsy.脑瘫患儿照料者的健康与幸福。
Pediatrics. 2005 Jun;115(6):e626-36. doi: 10.1542/peds.2004-1689.
6
Experiences of people with intellectual disabilities during the COVID-19 pandemic. A thematic synthesis.智力障碍者在新冠疫情期间的经历。一项主题综合分析。
Int J Dev Disabil. 2022 May 11;70(2):225-240. doi: 10.1080/20473869.2022.2072698. eCollection 2024.
7
A rapid mixed-methods evaluation of remote home monitoring models during the COVID-19 pandemic in England.英格兰 COVID-19 大流行期间远程家庭监护模式的快速混合方法评估。
Health Soc Care Deliv Res. 2023 Jul;11(13):1-151. doi: 10.3310/FVQW4410.
8
Staff and family views of alternative respite services for adults with intellectual disabilities - aims, outcomes and experiences.工作人员及家属对为智障成年人提供的替代性喘息服务的看法——目标、成果及体验
Int J Dev Disabil. 2019 Sep 27;67(4):296-306. doi: 10.1080/20473869.2019.1665773. eCollection 2021.
9
Family Caregiver Adaptation during the Transition to Adulthood of Individuals with Intellectual Disabilities: A Scoping Review.智障人士向成年期过渡期间家庭照顾者的适应:一项范围综述
Healthcare (Basel). 2024 Jan 3;12(1):116. doi: 10.3390/healthcare12010116.
10
Delivering allied health services to regional and remote participants on the autism spectrum via video-conferencing technology: lessons learned.通过视频会议技术为自闭症谱系障碍的偏远地区参与者提供联合健康服务:经验教训
Rural Remote Health. 2019 Sep;19(3):5358. doi: 10.22605/RRH5358. Epub 2019 Sep 2.

引用本文的文献

1
Family Support Experiences of Adult Persons with Intellectual Disability and Challenging Behaviour: A Scoping Review of Qualitative Studies.成年智障及具有挑战行为者的家庭支持经历:定性研究的范围综述
Int J Environ Res Public Health. 2025 Jun 7;22(6):911. doi: 10.3390/ijerph22060911.
2
Mainstream Technologies in Facilities for People With Intellectual Disabilities: Multiple-Methods Study Using the Nonadoption, Abandonment, Scale-Up, Spread, and Sustainability Framework.智障人士设施中的主流技术:使用未采用、废弃、扩大规模、传播和可持续性框架的多方法研究
JMIR Rehabil Assist Technol. 2024 Nov 5;11:e59360. doi: 10.2196/59360.
3
Experiences of people with intellectual disabilities during the COVID-19 pandemic. A thematic synthesis.智力障碍者在新冠疫情期间的经历。一项主题综合分析。
Int J Dev Disabil. 2022 May 11;70(2):225-240. doi: 10.1080/20473869.2022.2072698. eCollection 2024.
4
Care and rehabilitation institutions for people with intellectual disabilities during the COVID-19 pandemic: Polish experiences.新冠疫情期间智障人士护理与康复机构:波兰的经验
Int Soc Work. 2023 Jul;66(4):1080-1099. doi: 10.1177/00208728211060471. Epub 2021 Dec 29.
5
An update of the reported effects of the COVID-19 pandemic on person with intellectual disability and their carers: a scoping review.报告的 COVID-19 大流行对智障人士及其照顾者的影响的更新:范围综述。
Ann Med. 2023 Dec;55(1):2196437. doi: 10.1080/07853890.2023.2196437.
6
[The situation of people with intellectual and developmental disabilities in the COVID-19 pandemic-risk factors, problem areas, and measures].[新冠疫情中智力和发育障碍者的状况——风险因素、问题领域及应对措施]
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2023 Mar;66(3):283-291. doi: 10.1007/s00103-023-03661-z. Epub 2023 Feb 13.
7
Key learnings from COVID-19 to sustain quality of life for families of individuals with IDD.从新冠疫情中获得的关键经验教训,以维持智力和发育障碍患者家庭的生活质量。
J Policy Pract Intellect Disabil. 2022 Mar;19(1):72-85. doi: 10.1111/jppi.12415. Epub 2022 Mar 30.
8
'It really is quite a different ballgame'. A qualitative study into the work experiences of remote support professionals.“这真的是一个完全不同的领域”。一项关于远程支持专业人员工作经验的定性研究。
J Appl Res Intellect Disabil. 2022 Sep;35(5):1153-1161. doi: 10.1111/jar.13001. Epub 2022 Apr 26.

本文引用的文献

1
Stepping Out of Isolation: Autistic People and COVID-19.走出隔离:自闭症患者与新冠疫情
Autism Adulthood. 2020 Jun 1;2(2):103-105. doi: 10.1089/aut.2020.29012.jdh. Epub 2020 Jun 10.
2
The experience of the COVID-19 pandemic in a UK learning disability service: lost in a sea of ever changing variables - a perspective.英国一家学习障碍服务机构应对新冠疫情的经历:在不断变化的变量之海中迷失——一种观点
Int J Dev Disabil. 2020 Jun 1;68(3):374-377. doi: 10.1080/20473869.2020.1773711. eCollection 2022.
3
The effect on and experience of families with a member who has Intellectual and Developmental Disabilities of the COVID-19 pandemic in the UK: developing an investigation.英国新冠疫情对有智力和发育障碍家庭成员的家庭的影响及经历:开展一项调查
Int J Dev Disabil. 2020 May 15;68(2):234-236. doi: 10.1080/20473869.2020.1764257. eCollection 2022.
4
COVID-19 IDD: A global survey exploring family members' and paid staff's perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities and their caregivers.新冠疫情下的智力和发育障碍群体:一项全球调查,探究家庭成员及受雇员工对新冠疫情对智力和发育障碍个体及其照护者影响的看法。
HRB Open Res. 2020 Dec 3;3:39. doi: 10.12688/hrbopenres.13077.2. eCollection 2020.
5
Supports for people with intellectual and developmental disabilities during the COVID-19 pandemic from their own perspective.智障和发展障碍人士在 COVID-19 大流行期间的自身视角下的支持。
Res Dev Disabil. 2021 Jan;108:103813. doi: 10.1016/j.ridd.2020.103813. Epub 2020 Nov 9.
6
Effect of the COVID-19 pandemic on the mental health of carers of people with intellectual disabilities.COVID-19 大流行对智力障碍者照顾者心理健康的影响。
J Appl Res Intellect Disabil. 2020 Nov;33(6):1523-1533. doi: 10.1111/jar.12811. Epub 2020 Sep 21.
7
Guidance for the Treatment and Management of COVID-19 Among People with Intellectual Disabilities.针对智障人士的新型冠状病毒肺炎治疗与管理指南。
J Policy Pract Intellect Disabil. 2020 Sep;17(3):256-269. doi: 10.1111/jppi.12352. Epub 2020 Jun 10.
8
The use of online support by people with intellectual disabilities living independently during COVID-19.智力残疾人在 COVID-19 期间独立生活时使用在线支持。
J Intellect Disabil Res. 2020 Oct;64(10):750-756. doi: 10.1111/jir.12770. Epub 2020 Aug 24.
9
A balanced approach to decision-making in supporting people with IDD in extraordinarily challenging times.在极具挑战性的时期,为支持 IDD 患者做出决策时需采取平衡的方法。
Res Dev Disabil. 2020 Oct;105:103719. doi: 10.1016/j.ridd.2020.103719. Epub 2020 Jun 27.
10
COVID-19 outcomes among people with intellectual and developmental disability living in residential group homes in New York State.纽约州居住在集体住宅中的智障和发育障碍患者的 COVID-19 结局。
Disabil Health J. 2020 Oct;13(4):100969. doi: 10.1016/j.dhjo.2020.100969. Epub 2020 Jun 24.

新冠疫情期间对成年智障人士的远程支持:来自照料者的视角

Remote Support for Adults with Intellectual Disability During COVID-19: From a Caregiver's Perspective.

作者信息

Wos Klaudia, Kamecka-Antczak Celina, Szafrański Mateusz

机构信息

Interdisciplinary Doctoral School of Social Sciences Nicolaus Copernicus University in Toruń Torun Poland.

Faculty of Philosophy and Social Sciences Nicolaus Copernicus University in Toruń Torun Poland.

出版信息

J Policy Pract Intellect Disabil. 2021 Dec;18(4):279-285. doi: 10.1111/jppi.12385. Epub 2021 Jun 15.

DOI:10.1111/jppi.12385
PMID:34548876
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8447416/
Abstract

The reality of people with ID changed during the pandemic COVID-19. Most institutions supporting people with ID switched to remote work. This required some major adaptation to these individuals' new realities, their immediate families, and facility staff. Supporting and monitoring the quality of life of individuals with disabilities and their family members during a crisis is an essential topic of current research. This research project aimed to explore the experiences of parents of adults with ID in relation to remote support provided by public support agencies. In a qualitative study, the authors used semistructured individual interviews with caregivers of people with ID. Data analysis distinguished the following categories: parents as therapists, organization difficulties, material problems, lack of social contacts, positive solutions, and difficult behavior. The results show the difficulties of parents in balancing professional, domestic, and supporting tasks. The study was the first in Poland to report on the qualitative assessment of remote support for people with ID during COVID-19. Further, more extensive research is needed to search for solutions that respect the rights of people with disabilities to professional support.

摘要

在新冠疫情期间,智力残疾人士的实际情况发生了变化。大多数为智力残疾人士提供支持的机构转向了远程工作。这就需要对这些人的新现实情况、他们的直系亲属以及机构工作人员进行一些重大调整。在危机期间支持和监测残疾人士及其家庭成员的生活质量是当前研究的一个重要课题。这个研究项目旨在探索智力残疾成年人士的父母在接受公共支持机构提供的远程支持方面的经历。在一项定性研究中,作者对智力残疾人士的照料者进行了半结构化的个人访谈。数据分析区分出了以下几类:父母作为治疗师、组织困难、物质问题、缺乏社交联系、积极的解决方案以及困难行为。结果表明父母在平衡专业、家庭和支持任务方面存在困难。该研究是波兰首个关于新冠疫情期间对智力残疾人士远程支持的定性评估报告。此外,需要进行更广泛的研究以寻找尊重残疾人士获得专业支持权利的解决方案。