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人工耳蜗植入儿童的家庭与康复:一项定性研究。

Family and Rehabilitation of Children with Cochlear Implant: A Qualitative Study.

作者信息

Moradi Mina, Fallahi-Khoshknab Masoud, Dalvandi Asghar, Farhadi Mohammad, Maddah Sadat Seyed Bagher, Mohammadi Eesa

机构信息

Department of Nursing, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.

ENT and Head, Neck Research Center and Department, Hazrat Rasoul Hospital, The Five Senses Institute, Iran University of Medical Sciences, Tehran, Iran.

出版信息

Florence Nightingale J Nurs. 2022 Feb;30(1):18-24. doi: 10.5152/FNJN.2022.21043.

DOI:10.5152/FNJN.2022.21043
PMID:35635343
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC8958225/
Abstract

AIM

This study was conducted to explain the role of families in rehabilitating children with cochlear implants based on the participants' experiences and perceptions.

METHOD

This research is a qualitative study based on the method of contract content analysis, and it is conducted with semi-structured interviews to collect information in Iran in 2018-2019. The interview was conducted with 12 participants, including caregivers (child caregivers with a cochlear implant), and the process of data collection continued until saturation. Interviews were recorded and transcribed, and the data were analyzed using Gran Haim and Landman content analysis. This study was guided by consolidated criteria for reporting qualitative (COREQ).

RESULTS

The results of the study were formed in the main class titled the family, the effective rehabilitation factor, and two sub-classes titled supportive family and continuing professional and non-professional rehabilitation.

CONCLUSION

The findings of this study indicated that the rehabilitation process in these children will be incomplete without the presence and support of the family.

摘要

目的

本研究旨在根据参与者的经历和看法,阐释家庭在人工耳蜗植入儿童康复过程中的作用。

方法

本研究是一项基于合同内容分析法的定性研究,于2018 - 2019年在伊朗通过半结构化访谈收集信息。对12名参与者进行了访谈,包括照料者(人工耳蜗植入儿童的照料者),数据收集过程持续到饱和状态。访谈进行了录音和转录,并使用格兰·海姆和兰德曼内容分析法对数据进行了分析。本研究以定性研究报告的统一标准(COREQ)为指导。

结果

研究结果形成了名为家庭、有效康复因素的主要类别,以及名为支持性家庭和持续专业及非专业康复的两个子类别。

结论

本研究结果表明,没有家庭的参与和支持,这些儿童的康复过程将是不完整的。

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本文引用的文献

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The parents' perspective of the early diagnostic period of their child with hearing loss: information and support.父母对其听力受损孩子早期诊断阶段的看法:信息与支持
Int J Audiol. 2018 May;57(sup2):S3-S14. doi: 10.1080/14992027.2017.1301683. Epub 2017 Mar 23.
2
Personalised long-term follow-up of cochlear implant patients using remote care, compared with those on the standard care pathway: study protocol for a feasibility randomised controlled trial.与采用标准护理路径的患者相比,使用远程护理对人工耳蜗植入患者进行个性化长期随访:一项可行性随机对照试验的研究方案。
BMJ Open. 2016 May 13;6(5):e011342. doi: 10.1136/bmjopen-2016-011342.
3
Parental stress in raising Mandarin-speaking children with cochlear implants.养育使用人工耳蜗的讲普通话儿童的父母压力。
Laryngoscope. 2013 May;123(5):1241-6. doi: 10.1002/lary.23755. Epub 2013 Apr 2.
4
[Validation of rehabilitation and relative analysis for prelingually deafened children with cochlear implant].[人工耳蜗植入对语前聋儿童的康复效果验证及相关分析]
Lin Chuang Er Bi Yan Hou Tou Jing Wai Ke Za Zhi. 2011 Jul;25(13):582-4.
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Investigating child raising attitudes of fathers having or not having a child with hearing loss.
Int J Pediatr Otorhinolaryngol. 2011 May;75(5):681-5. doi: 10.1016/j.ijporl.2011.02.013. Epub 2011 Mar 10.
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Parenting Stress among Parents of Deaf and Hearing Children: Associations with Language Delays and Behavior Problems.聋儿与听力正常儿童父母的育儿压力:与语言发育迟缓及行为问题的关联
Parent Sci Pract. 2010 Apr 1;10(2):136-155. doi: 10.1080/15295190903212851.
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Music training improves pitch perception in prelingually deafened children with cochlear implants.音乐训练可改善人工耳蜗植入的语前聋儿童的音高感知能力。
Pediatrics. 2010 Apr;125(4):e793-800. doi: 10.1542/peds.2008-3620. Epub 2010 Mar 8.
8
Actual versus desired family-centered practice in early intervention for children with hearing loss.
J Deaf Stud Deaf Educ. 2010 Winter;15(1):59-71. doi: 10.1093/deafed/enp025. Epub 2009 Sep 17.
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Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.定性研究报告的统一标准(COREQ):访谈和焦点小组的32项清单
Int J Qual Health Care. 2007 Dec;19(6):349-57. doi: 10.1093/intqhc/mzm042. Epub 2007 Sep 14.
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Parenting a child with a cochlear implant: a critical incident study.养育一名植入人工耳蜗的儿童:一项关键事件研究。
J Deaf Stud Deaf Educ. 2007 Spring;12(2):221-41. doi: 10.1093/deafed/enl032. Epub 2007 Jan 20.