The Impact of Care Partners on the Mobility of Older Adults Receiving Hemodialysis.

RATIONALE & OBJECTIVE: Many older adults receiving hemodialysis have mobility limitations and rely on care partners, yet data are sparse regarding the support provided by care partners. Our aim was to examine how care partners support the mobility of an older adult receiving hemodialysis.

STUDY DESIGN

Qualitative study.

SETTING & PARTICIPANTS: Using purposive sampling, we recruited persons aged 60 years or more receiving maintenance hemodialysis and care partners aged 18 years or more who were providing support to an older adult receiving hemodialysis. We conducted in-person semi-structured interviews about mobility with each individual.

ANALYTICAL APPROACH

We conducted descriptive and focused coding of interview transcripts and employed thematic analysis. Our outcome was to describe perceived mobility supports provided by care partners using qualitative themes.

RESULTS

We enrolled 31 older adults receiving hemodialysis (42% women, 68% Black) with a mean age of 73 ± 8 years and a mean dialysis duration of 4.6 ± 3.5 years. Of these, 87% of patients used assistive devices and 90% had care partners. We enrolled 12 care partners (75% women, 33% Black) with a mean age of 54 ± 16 years. From our patient and care partner interviews, we found three themes: (1) what care partners , (2) what care partners , and (3) what care partners . Regarding what they , care partners witness a decline in patient mobility. Regarding what they , care partners guide and facilitate activities and manage others who also assist. Regarding what they , care partners respect the patient's autonomy but experience frustration and worry about the patient's future mobility.

LIMITATIONS

Modest sample size; single geographic area.

CONCLUSIONS

In older adults receiving hemodialysis, care partners observe a decline in mobility and provide support for mobility. They respect the patient's autonomy but worry about future mobility losses. Future research should incorporate care partners in interventions that address mobility in older adults receiving hemodialysis.