Wagenaar Marjolijn C, van der Putten Annette A J, Douma Johanna G, van der Schans Cees P, Waninge Aly
Research Group Healthy Ageing, Allied Health Care and Nursing, Hanze University of Applied Sciences Groningen, Groningen, the Netherlands.
Department of Inclusive and Special Needs Education, University of Groningen, Groningen, the Netherlands.
Heliyon. 2022 May 20;8(5):e09479. doi: 10.1016/j.heliyon.2022.e09479. eCollection 2022 May.
It is difficult to diagnose constipation for people with severe or profound intellectual disabilities. Definitions for this are ambiguous, and the symptoms and signs are often unnoticed. The aim of this study is to identify clear definitions of constipation for people with different levels of intellectual disabilities and to identify signs and symptoms.
Guided by the PRISMA statement, a systematic review of the literature was conducted within electronic databases MEDLINE, Embase, CINAHL, Cochrane, and PsycINFO. Definitions, signs, and symptoms were extracted and the quality of definitions was assessed.
In total, 24 studies were included. Quality of definitions ranged from poor to good quality. Standard and referenced definitions were used in ten studies, a self-composed definition was employed in eleven studies; and three studies did not refer to a source of the definition. The self-composed definitions had not been evaluated after being used for the target group, and no scientific substantiation was available. A broad range of signs and symptoms were described.
No substantiated definition has been ascertained for constipation for people with severe or profound intellectual disabilities. Further research will be necessary to identify which signs and symptoms are important for defining constipation in this target group.
对于重度或极重度智力残疾者而言，便秘难以诊断。其定义模糊，症状和体征常被忽视。本研究旨在明确不同智力残疾程度者便秘的清晰定义，并确定相关体征和症状。
以PRISMA声明为指导，在电子数据库MEDLINE、Embase、CINAHL、Cochrane和PsycINFO中对文献进行系统综述。提取定义、体征和症状，并评估定义的质量。
共纳入24项研究。定义质量从差到好不等。10项研究使用了标准和参考定义，11项研究采用了自行编写的定义；3项研究未提及定义来源。自行编写的定义在用于目标群体后未进行评估，也没有科学依据。描述了广泛的体征和症状。
尚未确定针对重度或极重度智力残疾者便秘的经证实的定义。需要进一步研究以确定哪些体征和症状对于界定该目标群体的便秘很重要。
