Lion Katarzyna Małgorzata, Moyle Wendy, Cations Monica, Day Sally, Pu Lihui, Murfield Jenny, Gabbay Mark, Giebel Clarissa
Griffith University, Brisbane, Queensland, Australia.
Flinders University, Adelaide, South Australia, Australia.
J Fam Nurs. 2022 Aug;28(3):205-218. doi: 10.1177/10748407221101638. Epub 2022 Jun 8.
The aim of this study was to explore how formal social support changed after implementation of the COVID-19 public health measures and how these restrictions affected people living with dementia and their informal carers in Australia. Sixteen informal carers and two people living with dementia were interviewed between August and November 2020. Participants were asked about their experiences of the pandemic and the impact that the restrictions had on their lives and care. Thematic analysis identified four overarching themes describing (a) prepandemic limitations of the aged care system, (b) the aged care system's response to the COVID-19 restrictions, (c) changes affecting informal carers, and (d) the challenges faced by people living with dementia. The findings highlighted the challenges faced by the Australian aged care system before the pandemic and the additional burden placed on informal carers who supported people living with dementia across residential and home settings during the pandemic.
本研究的目的是探讨在实施新冠疫情公共卫生措施后，正式社会支持如何变化，以及这些限制措施如何影响澳大利亚的痴呆症患者及其非正式护理人员。2020年8月至11月期间，对16名非正式护理人员和两名痴呆症患者进行了访谈。参与者被问及他们在疫情中的经历以及这些限制措施对他们生活和护理的影响。主题分析确定了四个总体主题，描述了（a）疫情前老年护理系统的局限性，（b）老年护理系统对新冠疫情限制措施的应对，（c）影响非正式护理人员的变化，以及（d）痴呆症患者面临的挑战。研究结果突出了疫情前澳大利亚老年护理系统面临的挑战，以及在疫情期间，为居住在养老院和家中的痴呆症患者提供支持的非正式护理人员所承受的额外负担。
