College of Pharmacy and Nutrition, 70398University of Saskatchewan, Saskatoon, SK, Canada.
Division of Respirology, Critical Care, and Sleep Medicine, 12371College of Medicine, University of Saskatchewan, Saskatoon, SK, Canada.
Prog Transplant. 2022 Sep;32(3):261-265. doi: 10.1177/15269248221107048. Epub 2022 Jun 10.
Patients awaiting lung transplantation must learn new information to successfully navigate the transplant process. A supplemental video series was piloted to patients at home during the Covid-19 pandemic to improve pre-transplant education. A mixed methods study was undertaken to assess patient experiences with this method of education, confirm the ideal timing of the education, and identify gaps that require further attention. Semi-structured interviews were conducted with 17 one-on-one or dyadic (patients and caregivers) who viewed the video series at home. A third-party researcher (not involved in creation of the educational materials) conducted the interviews by phone, which were audio recorded and then transcribed verbatim. NVivo 12 Pro for Windows software was used to code the data and identify emerging themes. Participants indicated that home-based videos were applicable, and informative and helpful (4.7 on 5-point Likert scale) and appreciated the advice and experiences of real patients. They were satisfied with their transplant education (4.2/5). While there were few aspects that the participants disliked about the videos, the interviews elicited outstanding questions about the transplant process (eg, logistical aspects of travel) and transplant concerns (eg, medications, expenses, and precautions in daily life). Patients being assessed or listed for lung transplant valued the novel electronic video education, and we will implement the home-based process into standard of care after the patient's initial visit with the transplant respirologist. Pre-transplant education will be tailored to help address the outstanding gaps identified in this program evaluation.
等待肺移植的患者必须学习新的信息，以成功地完成移植过程。在新冠疫情期间，我们在家中为患者试点了一个补充视频系列，以改善移植前的教育。我们进行了一项混合方法研究，以评估患者对这种教育方法的体验，确认教育的理想时间，并确定需要进一步关注的差距。我们对 17 名在家中观看视频系列的患者（或患者和护理人员组成的两人小组）进行了半结构化访谈。一名第三方研究人员（未参与教育材料的制作）通过电话进行了访谈，访谈内容被录音并逐字转录。我们使用 NVivo 12 Pro for Windows 软件对数据进行编码并识别出主题。 参与者表示，基于家庭的视频具有适用性、信息性和帮助性（5 分制 4.7 分），并赞赏真实患者的建议和经验。他们对自己的移植教育感到满意（5 分制 4.2 分）。虽然参与者对视频有一些不喜欢的方面，但访谈引出了有关移植过程（例如旅行的后勤方面）和移植关注（例如药物、费用和日常生活中的预防措施）的突出问题。正在接受评估或列入肺移植名单的患者重视这种新颖的电子视频教育，我们将在移植呼吸科医生对患者进行初次就诊后，将这种家庭式流程纳入标准护理。移植前教育将根据该方案评估中确定的突出差距进行定制，以帮助解决这些差距。
