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一种针对儿科和青少年肿瘤学的常规运动的国家实施方法:Network ActiveOncoKids。

A National Implementation Approach for Exercise as Usual Care in Pediatric and Adolescent Oncology: Network ActiveOncoKids.

机构信息

Department of Pediatric Hematology/Oncology, West German Cancer Centre, Clinic for Pediatrics III, University Hospital Essen, Essen,Germany.

Department of Pediatric Oncology, Hematology and Hemostaseology, University Hospital Leipzig, Leipzig,Germany.

出版信息

Pediatr Exerc Sci. 2022 Nov 1;34(4):219–226. doi: 10.1123/pes.2021-0218. Epub 2022 Jun 14.

Abstract

The diagnosis of cancer as well as accompanying acute and late effects of treatment are influencing physical activity behavior of patients with childhood cancer and survivors. Research has shown that a pediatric cancer diagnosis is associated with impairments of physical performance, and function, as well as reduced physical, and psychosocial, health conditions. From an ethical perspective, lack of knowledge of health care providers, lack of physical activity promotion, and environmental, and structural barriers to physical activity restrict children's right to move and actively engage in physical activities. Network ActiveOncoKids is a German-wide initiative with the main goal of enabling children, adolescents, and young adults with exercise opportunities during and after cancer treatment. Since the network's foundation in 2012, Network ActiveOncoKids focuses on: (1) physical activity support for patients and families, (2) policy change to establish structures and guidelines, and (3) generating evidence through scientific projects. The purpose of this paper is to present an overview of Network ActiveOncoKids structure, aims, and projects. This topical review will highlight the network's structural development, research work, and implementation progress of exercise programs for patients with pediatric cancer and survivors, link international collaborations, and discuss future directions.

摘要

癌症的诊断以及治疗带来的急性和晚期影响都会影响儿童癌症患者和幸存者的身体活动行为。研究表明,儿童癌症的诊断会导致身体机能和功能受损,以及身体和心理社会健康状况下降。从伦理的角度来看,医疗保健提供者缺乏知识、缺乏身体活动的促进、以及身体活动的环境和结构性障碍限制了儿童活动和积极参与身体活动的权利。Network ActiveOncoKids 是一个德国范围内的倡议,其主要目标是在癌症治疗期间和之后为儿童、青少年和年轻人提供锻炼机会。自 2012 年网络成立以来,Network ActiveOncoKids 专注于:(1)为患者和家庭提供身体活动支持,(2)进行政策改革以建立结构和准则,以及(3)通过科学项目生成证据。本文旨在介绍 Network ActiveOncoKids 的结构、目标和项目概览。这篇专题评论将重点介绍该网络的结构发展、研究工作以及为儿童癌症患者和幸存者实施锻炼计划的进展,链接国际合作,并讨论未来的方向。

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