Department of Educational and Counselling Psychology, Faculty of Education, McGill University, Montreal, QC, Canada.
Department of Oncology, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.
Support Care Cancer. 2022 Sep;30(9):7745-7754. doi: 10.1007/s00520-022-07207-y. Epub 2022 Jun 14.
Caring for a family member with cancer is often associated with significant cognitive, emotional, and physical demands. Although considerable research has explored informal cancer caregiver role burden, research has seldom focused on the experiences of individuals who hold the dual role of informal caregiver and healthcare professional. This qualitative study begins to explore this dual role experience. Participants (N = 12) who had at least 1 year of prior professional experience and cared for a family member with cancer were recruited conveniently from a large university-affiliated hospital in Montreal, Quebec. Individual face-to-face semi-structured interviews were conducted. Using thematic analysis, key themes were developed from verbatim transcripts: (1) salient dual role advantages, (2) significant challenges related to this role, (3) changes in professional practice as a consequence of informal caregiving, and (4) important palliative and end-of-life care access issues. Whereas professional knowledge helped advocate on behalf of patients, the dual role often came with over-solicitation from others, enhanced sense of responsibility, increased burden, and significant distress. Further study of critical ramifications linked to jointly enacting informal and professional caregiving across various health contexts should continue to inform supportive care strategies for this understudied yet increasingly prevalent segment of the caregiver population.
照顾癌症患者的家庭成员通常会带来重大的认知、情感和身体需求。尽管大量研究探讨了非正式癌症照顾者的角色负担,但很少有研究关注同时担任非正式照顾者和医疗保健专业人员的个人的经历。这项定性研究开始探索这一双重角色的体验。参与者(N=12)从魁北克省蒙特利尔的一家大型大学附属医院方便地招募,他们至少有 1 年的专业经验,并照顾癌症患者。进行了个体面对面半结构化访谈。使用主题分析,从逐字记录中开发出主要主题:(1)显著的双重角色优势,(2)与该角色相关的重大挑战,(3)由于非正式护理而导致的专业实践变化,以及(4)重要的姑息治疗和临终关怀获取问题。虽然专业知识有助于代表患者进行倡导,但双重角色通常会导致他人过度请求、增强责任感、增加负担和严重痛苦。应继续在各种健康背景下研究共同实施非正式和专业护理的相关关键影响,以为这一研究不足但日益普遍的照顾者群体提供支持性护理策略。