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出生臂丛神经损伤的“如何”和“频率”问题:小儿上肢运动活动日志修订版的效度和信度。

"How Well" and "How Often" questions for birth brachial plexus injury: a validity and reliability of the pediatric upper extremity motor activity log-revised.

机构信息

Faculty of Physical Therapy and Rehabilitation, Hacettepe University, Ankara, Turkey.

Medicine Faculty, Department of Orthopedics and Traumaology, Hacettepe University, Ankara, Turkey.

出版信息

Disabil Rehabil. 2023 Jun;45(13):2192-2198. doi: 10.1080/09638288.2022.2085333. Epub 2022 Jun 23.

Abstract

PURPOSE

The pediatric upper extremity motor activity log-revised (PMAL-R) is a structured interview that measures use of the affected arm in daily life in children with unilateral pathologies like hemiparetic cerebral palsy (CP) or birth brachial plexus injury (BBPI). This study investigated validity and test-retest reliability of the PMAL-R in children with BBPI.

MATERIALS AND METHODS

The PMAL-R was administered to parents of 132 children with BBPI between 5 and 9 years for validity, also 98 parents were re-interviewed after 3 weeks to establish test-retest reliability. Its concurrent validity was examined by correlating scores on the PMAL-R How Well (HW) and How Often (HO) scales with Brachial Plexus Outcome Measure (BPOM) and Pediatric Outcomes Data Collection Instrument (PODCI) scores.

RESULTS

PMAL-R scores were strongly correlated with BPOM scores (HW,  = 0.943,  < 0.001; HO,  = 0.897,  < 0.001), also strongly correlated with PODCI (HW,  = 0.799,  < 0.001; HO,  = 0.797,  < 0.001). PMAL-R test-retest reliability (intraclass correlation; HO = 0.997, HW = 0.998) and internal consistency (Cronbach's a; HO = 0.99, HW = 0.99) were high.

CONCLUSIONS

The PMAL-R has good reliability and validity for measuring everyday use of the affected arm with "how often" and "how well" questions in children with BBPI. Implications for rehabilitationThe pediatric upper extremity motor activity log-revised (PMAL-R) is the first tool to assess both "how often" and "how well" the affected arm is used in unimanual activities in children with BBPI.PMAL-R is a real-world measure providing valuable information about "how often" and "how well" the affected arm is used to guide treatment.PMAL-R is valid in both concurrent and discriminative validity in children with BBPI.PMAL-R is reliable in children with BBPI.

摘要

目的

小儿上肢运动活动日志修订版(PMAL-R)是一种结构化访谈,用于测量单侧疾病(如偏瘫脑瘫或产伤臂丛神经损伤)患儿日常生活中患侧手臂的使用情况。本研究调查了 PMAL-R 在产伤臂丛神经损伤患儿中的有效性和重测信度。

材料和方法

PMAL-R 用于 132 名 5-9 岁产伤臂丛神经损伤患儿的父母进行有效性评估,其中 98 名父母在 3 周后进行了再次访谈以建立重测信度。通过将 PMAL-R 的“How Well”(HW)和“How Often”(HO)量表的得分与臂丛神经损伤结果测量(BPOM)和儿科结果数据采集工具(PODCI)的得分进行相关分析,检验其同时效度。

结果

PMAL-R 得分与 BPOM 得分呈高度相关(HW, = 0.943, < 0.001;HO, = 0.897, < 0.001),与 PODCI 也呈高度相关(HW, = 0.799, < 0.001;HO, = 0.797, < 0.001)。PMAL-R 的重测信度(组内相关;HO = 0.997,HW = 0.998)和内部一致性(Cronbach's a;HO = 0.99,HW = 0.99)较高。

结论

PMAL-R 具有良好的可靠性和有效性,可用于测量产伤臂丛神经损伤患儿日常使用患侧手臂进行单臂活动的“频率”和“程度”。

对康复的影响

小儿上肢运动活动日志修订版(PMAL-R)是第一个评估产伤臂丛神经损伤患儿单臂活动中患侧手臂“频率”和“程度”的工具。PMAL-R 是一种真实世界的测量工具,可提供有关患侧手臂使用频率和程度的宝贵信息,以指导治疗。PMAL-R 在产伤臂丛神经损伤患儿中具有同时效度和区分效度。PMAL-R 在产伤臂丛神经损伤患儿中具有可靠性。

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