Lira Rodríguez Eva M, Pascual Rocío Cremallet, Sanclemente Miguel Puyuelo, Martín-Hernández Pilar, Gil-Lacruz Marta, Gil-Lacruz Ana I
Faculty of Human Sciences and Education, University of Zaragoza, 22003 Huesca, Spain.
Faculty of Social and Human Sciences, University of Zaragoza, 40003 Teruel, Spain.
Children (Basel). 2022 May 24;9(6):769. doi: 10.3390/children9060769.
The aim of the present study is to analyze the relation between the severity of symptoms in people with ASD on their parents' overload, moderated by parental well-being and the ASD pragmatic level. A sample consisted of 28 fathers and mothers whose children had ASD. The obtained results showed that the higher the ASD severity, the better the parental overload was perceived if parents had low well-being levels. However, this relation did not occur if the parental well-being level was high. Moreover, the relation between severity and parental overload moderated by parental well-being occurred regardless of the pragmatic language level. Therefore, the main results of this study are that the responsibility for parental overload depends more on parental well-being than on the symptom severity of the person with ASD. The relevance of carrying out interventions with not only people with ASD, but also with their parents or caregivers for their well-being is highlighted.
本研究的目的是分析孤独症谱系障碍（ASD）患者症状严重程度与父母负担之间的关系，该关系受到父母幸福感和ASD语用水平的调节。样本包括28名孩子患有ASD的父亲和母亲。所得结果表明，如果父母幸福感水平较低，ASD严重程度越高，父母负担感反而越好。然而，如果父母幸福感水平较高，则不存在这种关系。此外，无论语用语言水平如何，由父母幸福感调节的严重程度与父母负担之间的关系都会出现。因此，本研究的主要结果是，父母负担的责任更多地取决于父母的幸福感，而不是ASD患者的症状严重程度。强调了不仅要对ASD患者，还要对其父母或照顾者进行干预以促进他们幸福感的重要性。
