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An evaluation of school involvement and satisfaction of parents of children with autism spectrum disorders.自闭症谱系障碍儿童家长的学校参与度和满意度评估。
Am J Intellect Dev Disabil. 2012 Jul;117(4):316-30. doi: 10.1352/1944-7558-117.4.316.
2
Prevalence of autism spectrum disorders--Autism and Developmental Disabilities Monitoring Network, 14 sites, United States, 2008.自闭症谱系障碍的流行率——自闭症及发展障碍监测网络,美国 14 个监测点,2008 年。
MMWR Surveill Summ. 2012 Mar 30;61(3):1-19.
3
Autism spectrum disorder: parenting stress, family functioning and health-related quality of life.自闭症谱系障碍:育儿压力、家庭功能与健康相关生活质量。
Fam Syst Health. 2011 Sep;29(3):232-252. doi: 10.1037/a0025341.
4
Autism spectrum disorders.自闭症谱系障碍
Aust Fam Physician. 2011 Sep;40(9):672-7.
5
Psychometric properties of the Caregiver Strain Questionnaire (CGSQ) among caregivers of children with autism.自闭症儿童照顾者的 caregiver 压力问卷(CGSQ)的心理测量特性。
Autism. 2012 Mar;16(2):179-99. doi: 10.1177/1362361311406143. Epub 2011 Jun 29.
6
The relationships among adaptive behaviors of children with autism, family support, parenting stress, and coping.自闭症儿童的适应行为、家庭支持、育儿压力与应对方式之间的关系。
Issues Compr Pediatr Nurs. 2011;34(1):4-25. doi: 10.3109/01460862.2011.555270.
7
Beyond an autism diagnosis: children's functional independence and parents' unmet needs.超越自闭症诊断:儿童的功能独立性和家长的未满足需求。
J Autism Dev Disord. 2011 Oct;41(10):1291-302. doi: 10.1007/s10803-010-1148-y.
8
Assessment of health-related quality of life among primary caregivers of children with autism spectrum disorders.评估自闭症谱系障碍儿童主要照顾者的健康相关生活质量。
J Autism Dev Disord. 2011 Sep;41(9):1214-27. doi: 10.1007/s10803-010-1140-6.
9
Access to and satisfaction with school and community health services for US children with ASD.美国自闭症儿童获得和对校医和社区卫生服务的满意度。
Pediatrics. 2009 Dec;124 Suppl 4:S407-13. doi: 10.1542/peds.2009-1255L.
10
Health care use and health and functional impact of developmental disabilities among US children, 1997-2005.1997 - 2005年美国儿童发育障碍的医疗保健利用情况及其对健康和功能的影响
Arch Pediatr Adolesc Med. 2009 Jan;163(1):19-26. doi: 10.1001/archpediatrics.2008.506.

儿童自闭症严重程度:对西弗吉尼亚州照顾者对学校服务满意度的影响。

Child's autism severity: effect on West Virginia caregiver satisfaction with school services.

作者信息

Vohra Rini, Madhavan Suresh, Khanna Rahul, Becker-Cottrill Barbara

出版信息

W V Med J. 2014 Sep-Oct;110(5):32-9.

PMID:25643472
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4887845/
Abstract

Survey data was collected from 301 primary caregivers of children with autism registered at West Virginia Autism Training Center (WV ATC), to examine the impact of child's autism severity on caregiver satisfaction with school services. Satisfaction with six school services was measured via a 3-point Likert scale: speech-language therapy, occupational therapy, social skills training, physical therapy, behavioral interventions, and assistance in improving study skills. Ordinal logistic regressions showed that caregivers of children with high autism severity were less likely to be satisfied with school services, as compared to caregivers of children with low autism severity (OR's from 0.45 to 0.39). No significant differences existed in caregiver satisfaction with services between high and low autism severity groups, after addition of caregiver burden to the model. Findings suggest that child's autism severity is a significant predictor of caregiver satisfaction with school services, and should be considered during development of child's Individualized Education Program(IEP) and evaluation of caregiver satisfaction with the IEP.

摘要

研究数据收集自西弗吉尼亚州自闭症培训中心(WV ATC)登记在册的301名自闭症儿童的主要照顾者,以考察儿童自闭症严重程度对照顾者对学校服务满意度的影响。通过3点李克特量表对六项学校服务的满意度进行了测量:言语语言治疗、职业治疗、社交技能训练、物理治疗、行为干预以及学习技能提升辅助。有序逻辑回归显示,与低自闭症严重程度儿童的照顾者相比,高自闭症严重程度儿童的照顾者对学校服务满意的可能性更低(比值比从0.45到0.39)。在模型中加入照顾者负担后,高、低自闭症严重程度组的照顾者对服务的满意度没有显著差异。研究结果表明,儿童的自闭症严重程度是照顾者对学校服务满意度的一个重要预测因素,在制定儿童的个性化教育计划(IEP)以及评估照顾者对IEP的满意度时应予以考虑。