Stümpel Johanne, van Munster Marlena, Grosjean Sylvie, Pedrosa David J, Mestre Tiago A
Cologne Center for Ethics, Rights, Economics, and Social Sciences of Health (Ceres), University of Cologne, 50923 Cologne, Germany.
Center for Life Ethics, University of Bonn, 53113 Bonn, Germany.
J Pers Med. 2022 Jun 1;12(6):921. doi: 10.3390/jpm12060921.
Integrated care models may help in designing care for Parkinson's disease (PD) that is more efficient and patient-centered. However, in order to implement such models successfully, it is important to design these models around patients' needs and preferences. Personality traits and coping styles play a well-studied important role in patients' disease perception and their utilization of medical and social services to cope with their disease. There is evidence that coping styles remain largely unchanged over the course of PD; coping styles are defined in the early stages of life and extend over the entire lifespan of the patient. Therefore, it seems necessary to consider aspects of the personality traits and coping styles of PD patients in the development and implementation of care models. We postulate that by taking patients' personality traits and coping styles into account, care models for PD can be designed in a more individualized and, thus, more effective way. This paper, structured in three main sections, attempts to structure the uptake of patients' coping styles in the co-design of integrated care models. However, further studies are needed to better develop tailored care concepts to the needs of people living with PD and their individual coping styles.
综合护理模式可能有助于设计出更高效且以患者为中心的帕金森病（PD）护理方案。然而，为了成功实施此类模式，围绕患者的需求和偏好来设计这些模式至关重要。人格特质和应对方式在患者对疾病的认知以及他们利用医疗和社会服务来应对疾病方面发挥着经过充分研究的重要作用。有证据表明，在帕金森病病程中，应对方式在很大程度上保持不变；应对方式在生命早期就已形成，并贯穿患者的整个生命周期。因此，在护理模式的开发和实施过程中，考虑帕金森病患者的人格特质和应对方式的各个方面似乎是必要的。我们推测，通过考虑患者的人格特质和应对方式，可以以更个性化、进而更有效的方式设计帕金森病护理模式。本文分为三个主要部分，试图构建在综合护理模式的共同设计中对患者应对方式的接纳。然而，还需要进一步研究，以便更好地根据帕金森病患者的需求及其个体应对方式制定量身定制的护理理念。
