Grosjean Sylvie, Ciocca Jean-Luc, Gauthier-Beaupré Amélie, Poitras Emely, Grimes David, Mestre Tiago
Department of Communication, University of Ottawa, Canada.
Faculty of Education, University of Ottawa, Canada.
Digit Health. 2022 Feb 25;8:20552076221081695. doi: 10.1177/20552076221081695. eCollection 2022 Jan-Dec.
eHealth technologies play a role in the development of integrated care models for people living with Parkinson disease by improving communication with their health care teams and support self-care practices in a personalized way. This article presents a co-design approach to designing an eHealth technology, the eCARE-PD platform, that addresses the needs and expectations of people living with Parkinson disease, generates tailored care tips, and recommends actions for managing care priorities at home. We use a co-design approach involving four main iterative phases: (1) preparation, (2) mapping, (3) testing and using, and (4) co-producing solutions and requirements. This approach uses several methods to engage people directly to design this technology. The study allowed us to identify design principles to be integrated in the development of the eCARE-PD platform. These principles incorporate the expectations of future users, which were expressed during the iterative phases of the co-design process: (a) six key design features based on users' needs and expectations, (b) six main issues users raised during a test at home and key features for improving the design of the eCARE-PD platform, and (c) collective solutions to design an interactive, meaningful, tailored, empathic, and socially acceptable technology. The results of the successive phases of the co-design process allow us to underline the progressive constitution of a technology defined over successive iterations as a digital companion supporting the self-care process at home and having the capacity to generate tailored digital health communication.
电子健康技术通过改善与医疗团队的沟通并以个性化方式支持自我护理实践，在帕金森病患者综合护理模式的发展中发挥作用。本文介绍了一种共同设计方法，用于设计一种电子健康技术——eCARE-PD平台，该平台可满足帕金森病患者的需求和期望，生成量身定制的护理小贴士，并推荐在家中管理护理重点的行动。我们采用了一种涉及四个主要迭代阶段的共同设计方法：（1）准备阶段，（2）映射阶段，（3）测试与使用阶段，以及（4）共同生成解决方案和需求阶段。这种方法使用多种方法让人们直接参与该技术的设计。该研究使我们能够确定在eCARE-PD平台开发中要整合的设计原则。这些原则纳入了在共同设计过程的迭代阶段所表达的未来用户的期望：（a）基于用户需求和期望的六个关键设计特征，（b）用户在家庭测试期间提出的六个主要问题以及改进eCARE-PD平台设计的关键特征，以及（c）设计一种交互式、有意义、量身定制、有同理心且社会可接受的技术的集体解决方案。共同设计过程连续阶段的结果使我们能够强调一种技术的逐步构成，该技术在连续迭代中被定义为支持家庭自我护理过程并能够生成量身定制的数字健康沟通的数字伴侣。
