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理解中国肺癌姑息化疗中老年患者照顾者的体验:一项定性研究。

Understanding the experiences of older caregivers of patients with lung cancer during palliative chemotherapy in China: a qualitative study.

机构信息

Shandong Provincial Hospital Affiliated to Shandong First Medical University, No. 324, Jingwuweiqi Road, Jinan, Shandong, 250021, People's Republic of China.

Shandong Women's University, 2399 Daxue Road, Jinan, Shandong, 250300, People's Republic of China.

出版信息

Support Care Cancer. 2022 Oct;30(10):8011-8018. doi: 10.1007/s00520-022-07247-4. Epub 2022 Jun 28.

DOI:10.1007/s00520-022-07247-4
PMID:35764692
Abstract

PURPOSE

Although there has been an increase in research on caregivers of patients with cancer, there has been little focus on the specific experiences of older caregivers of patients with lung cancer and the effect of their cultural backgrounds on their experiences. This study explored the caregiver experience among the ageing population in China.

METHODS

Older caregivers of patients with lung cancer undergoing palliative chemotherapy were recruited. Data were collected using a qualitative descriptive design involving semi-structured interviews, which were recorded, transcribed verbatim and analysed qualitatively using inductive content analysis.

RESULTS

Eighteen caregivers aged 61-81 years completed the interviews. The following four themes were identified: physical difficulty, living with ambivalence, perception of role and role-related behaviour changes. These themes enabled a greater understanding of role-related behaviours in older caregivers and their challenges in addressing biological and psychosocial challenges related to older age.

CONCLUSION

The present study highlighted the vulnerability and perceived challenges of the role of older caregivers. These findings help lay the foundation for interventions to improve the care provided to caregivers and their health outcomes, especially caregivers with chronic conditions.

摘要

目的

尽管针对癌症患者照顾者的研究有所增加,但很少关注老年肺癌患者照顾者的特定经历以及其文化背景对其经历的影响。本研究探讨了中国老年人群体中的照顾者体验。

方法

招募了正在接受姑息化疗的肺癌患者的老年照顾者。使用定性描述设计收集数据,包括半结构化访谈,对访谈进行录音、逐字转录,并使用归纳内容分析进行定性分析。

结果

18 名年龄在 61-81 岁的照顾者完成了访谈。确定了以下四个主题:身体困难、生活中的矛盾心理、角色认知和与角色相关的行为变化。这些主题使我们能够更好地理解老年照顾者的角色相关行为及其在应对与年龄相关的生物和心理社会挑战方面的挑战。

结论

本研究强调了老年照顾者角色的脆弱性和感知到的挑战。这些发现为改善照顾者及其健康结果(尤其是慢性病照顾者)提供了干预措施的基础。

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Caring experiences of family caregivers of patients with pancreatic cancer: an integrative literature review.胰腺癌患者家属照护者的关怀体验:综合文献回顾。
Support Care Cancer. 2022 May;30(5):3691-3700. doi: 10.1007/s00520-021-06793-7. Epub 2022 Jan 7.
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The Relationship Between Symptom Severity and Caregiver Burden in Cancer Patients Under Palliative Care: A Cross-Sectional Study.癌症患者姑息治疗中症状严重程度与照料者负担的关系:一项横断面研究。
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Experiences of being a family caregiver to a patient treated for oesophageal cancer-1 year after surgery.
回顾疗法在癌症相关症状管理中的疗效:系统评价和荟萃分析。
Integr Cancer Ther. 2023 Jan-Dec;22:15347354221147499. doi: 10.1177/15347354221147499.
食管癌患者术后1年家庭照护者的经历
Support Care Cancer. 2022 Jan;30(1):915-921. doi: 10.1007/s00520-021-06501-5. Epub 2021 Aug 19.
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Self-care, resilience, and caregiver burden in relatives of patients with advanced cancer: results from the eQuiPe study.自我护理、韧性和晚期癌症患者亲属的照顾者负担:来自 eQuiPe 研究的结果。
Support Care Cancer. 2021 Dec;29(12):7975-7984. doi: 10.1007/s00520-021-06365-9. Epub 2021 Jul 3.
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Patients and family caregivers report high treatment expectations during palliative chemotherapy: a longitudinal prospective study.患者和家属在姑息化疗期间报告了较高的治疗期望:一项纵向前瞻性研究。
BMC Palliat Care. 2021 Feb 26;20(1):37. doi: 10.1186/s12904-021-00731-4.
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Supporting older adults with chemotherapy treatment: A mixed methods exploration of cancer caregivers' experiences and outcomes.支持接受化疗治疗的老年人:癌症照护者的体验和结果的混合方法探索。
Eur J Oncol Nurs. 2021 Feb;50:101877. doi: 10.1016/j.ejon.2020.101877. Epub 2020 Nov 17.
7
Feeling responsible: Family caregivers' attitudes and experiences of shared decision-making regarding people diagnosed with schizophrenia: A qualitative study.感到有责任:家庭照顾者对被诊断为精神分裂症的人共同决策的态度和经验:一项定性研究。
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