关于在普通实践中使用电子健康记录的汇总数据的伦理考虑因素。
Ethical considerations regarding the use of pooled data from electronic health records in general practice.
机构信息
FRACGP, PhD, MIPH, Associate Professor in Primary Care and Academic Lead in General Practice, School of Medicine and Dentistry, Griffith University, Qld.
MBBS, MPH, PhD, FRACGP, Academic Leader @ Community-Based Health Education and Chair of Phase 3, School of Medicine, University of Wollongong, Wollongong, NSW.
出版信息
Aust J Gen Pract. 2022 Jul;51(7):537-540. doi: 10.31128/AJGP-08-21-6140.
BACKGROUND
It is important that research conducted in general practice is ethical and technically robust. Electronic health records (EHRs) have high potential to contribute to research and policy that benefits both individual patients and the broader community. General practitioners are increasingly approached to make EHRs available for research, but they also have ethical and legal obligations to ensure personal information remains confidential and is handled safely.
OBJECTIVE
The aim of this article is to discuss the ethical considerations associated with the pooling of general practice EHRs for research.
DISCUSSION
There are associated benefits and potential risks to patients and practices when using pooled EHR data for research. Careful consideration and judgement are required to ensure ethical requirements are met, with particular attention to informed consent, data quality and confidentiality.
背景
在普通科医学中进行的研究，其道德和技术方面都必须达到一定的标准，这一点很重要。电子健康记录（EHRs）在促进有利于个体患者和更广泛社区的研究和政策方面具有很高的潜力。越来越多的全科医生被要求提供 EHR 以供研究使用，但他们也有道德和法律义务确保个人信息保密并安全处理。
目的
本文旨在讨论与普通科医学电子健康记录（EHRs）的汇集相关的伦理问题，以用于研究。
讨论
当使用汇集的 EHR 数据进行研究时，患者和医疗机构都可能面临相关的利益和潜在风险。在满足伦理要求方面需要进行仔细的考虑和判断，特别要注意知情同意、数据质量和保密性。
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