Central Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital, Adelaide, South Australia.
Faculty of Health and Medical Sciences, University of Adelaide, South Australia.
Aust N Z J Public Health. 2022 Oct;46(5):614-621. doi: 10.1111/1753-6405.13280. Epub 2022 Jul 7.
To describe a process of meaningful Aboriginal community engagement that repositioned and valued community members' knowledge(s) and lived experiences while strengthening relationships, research processes and outcomes.
Aboriginal Australians have the oldest continuous culture in the world, yet due to effects of colonisation, experience some of the world's poorest health outcomes. The AKction [Aboriginal Kidney Care Together - Improving Outcomes Now] project brought together Aboriginal people with lived experience of kidney disease, clinicians and researchers to improve kidney care.
Using Aboriginal methodologies of Ganma and Dadirri within community-based participatory action research (cb-PAR), a core advisory group of Aboriginal people with lived experiences of kidney disease worked closely with clinicians and researchers.
Three community consultation workshops that deeply valued Aboriginal knowledge(s) were co-created. Community members formed a reference group, established partnerships and influenced health research, policy and service provision. Non-Indigenous researchers engaged in critical self-reflection and levelling of Western-Aboriginal and clinician-consumer power imbalances.
Deeply respectful community engagement is possible through co-creation and cb-PAR. It results in multiple positive impacts and beneficial relationships between community members, clinicians and academics.
Meaningful consultation with Aboriginal communities guides culturally safe research processes, health policy and service delivery.
描述一种有意义的原住民社区参与过程，该过程重新定位和重视社区成员的知识和生活经验，同时加强关系、研究过程和结果。
澳大利亚原住民拥有世界上最古老的连续文化，但由于殖民化的影响，他们的健康状况是世界上最差的。AKction [原住民肾脏护理合作-现在改善结果]项目将有肾脏疾病生活经历的原住民、临床医生和研究人员聚集在一起，以改善肾脏护理。
在以原住民为基础的参与式行动研究 (cb-PAR) 中，使用 Ganma 和 Dadirri 的原住民方法，有肾脏疾病生活经历的原住民核心顾问小组与临床医生和研究人员密切合作。
共同创建了三个非常重视原住民知识的社区咨询研讨会。社区成员组成了一个参考小组，建立了伙伴关系，并影响了健康研究、政策和服务提供。非原住民研究人员进行了批判性的自我反思，并平衡了西方原住民和临床医生-消费者之间的权力不平衡。
通过共同创造和 cb-PAR 可以实现深度尊重的社区参与。它导致社区成员、临床医生和学者之间的多种积极影响和有益关系。
与原住民社区进行有意义的协商指导文化安全的研究过程、健康政策和服务提供。
