Faculty of Health and Medical Sciences, University of Adelaide, South Australia.
Central Northern Adelaide Renal and Transplantation Service, Royal Adelaide Hospital.
Aust N Z J Public Health. 2022 Oct;46(5):622-629. doi: 10.1111/1753-6405.13279. Epub 2022 Jul 7.
To describe the experiences, perceptions and suggested improvements in healthcare identified by Aboriginal patients, families and community members living with kidney disease in South Australia.
Community consultations were held in an urban, rural and remote location in 2019 by the Aboriginal Kidney Care Together - Improving Outcomes Now (AKction) project and Kidney Health Australia. Consultations were co-designed with community members, using participatory action research, Yarning, Dadirri and Ganma Indigenous Methodologies. Key themes were synthesised, verified by community members and shared through formal and community reports and media.
Aboriginal participants identified the importance of: family and community and maintaining their wellbeing, strength and resilience; the need for prevention and early detection that is localised, engages whole families and prevents diagnosis shock; better access to quality care that ensures Aboriginal people can make informed choices and decisions about their options for dialysis and transplantation, and; more Aboriginal health professionals and peer navigators, and increased responsiveness and provision of cultural safety care by all kidney health professionals.
Aboriginal community members have strong and clear recommendations for improving the quality and responsiveness of health care generally, and kidney care specifically.
Aboriginal people with lived experience of chronic conditions wish to significantly inform the way care is organised and delivered.
描述南澳大利亚州患有肾脏疾病的土著患者、家庭和社区成员在医疗保健方面的体验、看法和改进建议。
2019 年，由 Aboriginal Kidney Care Together-Improving Outcomes Now (AKction) 项目和 Kidney Health Australia 在城市、农村和偏远地区进行了社区咨询。咨询工作是与社区成员共同设计的，采用了参与式行动研究、Yarning、Dadirri 和 Ganma 土著方法。通过正式报告和社区报告以及媒体分享了综合的关键主题，由社区成员进行了验证。
土著参与者确定了以下几点的重要性：家庭和社区，保持他们的健康、力量和适应力；需要本地化的预防和早期检测，让整个家庭参与其中，并防止诊断冲击；更好地获得优质护理，以确保土著人民能够就其透析和移植选择做出明智的选择和决定；更多的土著卫生专业人员和同行导航员，以及所有肾脏保健专业人员提高响应能力并提供文化安全护理。
土著社区成员对改善一般医疗保健质量和响应能力，特别是肾脏保健质量和响应能力提出了强烈而明确的建议。
有慢性疾病生活经历的土著人希望在很大程度上告知护理的组织和提供方式。
