School of Nursing and Health, Nanfang College, Guangzhou, Guangzhou, China.
Florence Nightingale Faculty of Nursing, Midwifery & Palliative Care, King's College London, London, UK.
BMC Psychiatry. 2022 Jul 13;22(1):464. doi: 10.1186/s12888-022-04106-8.
Advance care planning (ACP) enables people to define goals and preferences for future medical treatment and care. Despite universal recognition of the importance of ACP for people with Alzheimer´s disease (AD) internationally, there is little support for its implementation in China. The viewpoint of family caregivers is crucial in making clinical decisions about AD. Therefore, it's critical to understand the family caregivers' perspectives on ACP in order to promote its practice among people with AD in China.
Seventeen family caregivers of people with AD were purposively selected in three communities in Guangzhou. Semi-structured interviews were conducted to collect data and the data were analyzed using the thematic analysis.
Three main themes were extracted: ①Attitudes toward ACP including positive and negative attitudes; ②Social pressure influencing ACP decision; ③Behavioral willingness of the implementation of ACP.
Attitudes, social pressure, and behavioral willingness characterized the behavioral intentions of family caregivers of people with Alzheimer's disease. It is recommended to strengthen efforts to publicity of advance care planning and promote legislation in China.
预先医疗照护计划（advance care planning，ACP）使人们能够确定未来医疗和护理的目标和偏好。尽管国际上普遍认识到 ACP 对阿尔茨海默病（Alzheimer's disease，AD）患者的重要性，但在中国，对其实施的支持甚少。在 AD 患者的临床决策中，家属照顾者的观点至关重要。因此，了解家属照顾者对 ACP 的看法对于在中国推广 AD 患者的 ACP 实践至关重要。
在广州的三个社区中，有目的选择了 17 名 AD 患者的家属照顾者。采用半结构式访谈收集数据，并使用主题分析对数据进行分析。
提取出三个主要主题：①对 ACP 的态度，包括积极和消极的态度；②影响 ACP 决策的社会压力；③实施 ACP 的行为意愿。
阿尔茨海默病患者家属照顾者的行为意向表现为态度、社会压力和行为意愿。建议加强在中国宣传预先医疗照护计划和促进立法的力度。
