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记录慢性病痛:讲述慢性疼痛的无意义

Chronicling the chronic: narrating the meaninglessness of chronic pain.

作者信息

van Hout Femke, van Rooden Aukje, Slatman Jenny

机构信息

Philosophy, University of Amsterdam, Amsterdam, Netherlands

Philosophy, University of Amsterdam, Amsterdam, Netherlands.

出版信息

Med Humanit. 2022 Jul 18;49(1):1-8. doi: 10.1136/medhum-2021-012331.

Abstract

This article proposes a way of narrating chronic pain: the telling of a Recent work in the medical humanities has been critical of traditional approaches to illness narratives. In line with this criticism, we argue that the experience of chronic pain resists internally coherent, plot-driven-in other words, Aristotelian-narrative. Drawing on phenomenological studies, we state that chronic pain is an utterly meaningless experience due to its relentless continuation over time. It therefore defies any narrative search for a higher meaning or purpose as well as the search for a coherent and progressive 'plot'. However, we reject the idea that chronic pain could therefore only be captured in the form of a meaningless, unshareable and chaotic anti-narrative. Instead, we propose that chronic pain could be borne witness to through the speech act of -an ongoing telling about ongoing suffering. Building on work of contemporary philosophers Philippe Lacoue-Labarthe and Jean-Luc Nancy, we examine what the chronicle entails by touching on three themes: time, meaning, and the body. First, we argue that chronicling allows people to bear witness to chronic pain's purposeless continuation over time, thereby affirming the utter meaninglessness of the experience. Second, we argue that it is precisely in the affirmation of this meaninglessness that a can be experienced: a meaning which cannot be detached from the sensory experience of telling and listening itself. Third, we examine how chronicling chronic pain could allow the muted and painful body to once again meaningfully express itself to others.

摘要

本文提出了一种叙述慢性疼痛的方式

讲述一个近期医学人文学科的研究对疾病叙事的传统方法提出了批评。与此批评一致,我们认为慢性疼痛的体验抗拒内在连贯、情节驱动——换句话说,亚里士多德式的叙事。借鉴现象学研究,我们指出,由于慢性疼痛随着时间的持续不断,它是一种完全无意义的体验。因此,它无视任何对更高意义或目的的叙事探寻,以及对连贯且渐进的“情节”的探寻。然而,我们反对这样一种观点,即慢性疼痛因此只能以一种无意义、不可分享且混乱的反叙事形式来呈现。相反,我们提出,慢性疼痛可以通过持续讲述持续痛苦的言语行为来见证。基于当代哲学家菲利普·拉库-拉巴特和让-吕克·南希的著作,我们通过探讨三个主题来审视编年史的内涵:时间、意义和身体。首先,我们认为编年史使人们能够见证慢性疼痛随着时间无目的的延续,从而肯定这种体验的完全无意义。其次,我们认为正是在对这种无意义的肯定中,可以体验到一种意义:一种无法与讲述和聆听本身的感官体验相分离的意义。第三,我们研究记录慢性疼痛如何能让沉默且疼痛的身体再次有意义地向他人表达自身。

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本文引用的文献

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Before narrative: episodic reading and representations of chronic pain.叙事之前:慢性疼痛的情景性阅读与表征
Med Humanit. 2018 Jun;44(2):106-112. doi: 10.1136/medhum-2017-011223. Epub 2018 Jan 5.
4
The Experiential Paradoxes of Pain.疼痛的体验性悖论
J Med Philos. 2016 Oct;41(5):444-60. doi: 10.1093/jmp/jhw020. Epub 2016 Jul 29.
7
Clinical judgement heuristics: methods and models.临床判断启发法:方法与模型
Eur J Pain. 2013 Nov;17(10):1423-4. doi: 10.1002/j.1532-2149.2013.00392.x.
10
The limits of narrative: provocations for the medical humanities.叙事的局限:对医学人文学科的启发
Med Humanit. 2011 Dec 1;37(2):73-8. doi: 10.1136/medhum-2011-010045. Epub 2011 Oct 28.

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