Department of Medicine, College of Medicine, King Saud University, Riyadh, Saudi Arabia.
Department of Zoology, College of Sciences, King Saud University, Riyadh, Saudi Arabia.
Qual Life Res. 2022 Nov;31(11):3229-3239. doi: 10.1007/s11136-022-03184-1. Epub 2022 Jul 20.
The COVID-19 pandemic might add to the stressors experienced by people living with rheumatic diseases. This study aimed to examine rheumatic patients' functional and psychosocial states during the pandemic and assess its impact on their quality of life.
Our time-series study included a patient-centered electronic survey, sampling adult rheumatic patients living in Saudi Arabia at different time points from March to August 2020. Patient-reported outcomes included physical function, anxiety, depression, fatigue, sleep disturbance, ability to participate in social roles, and pain interference domains were measured using the Patient-Reported Outcomes Measurement Information System (PROMIS-29 Profile v2.1).
A total of 1278 respondents were enrolled. Results showed significant variation in patients' experiences. Our analyses revealed that the physical well-being of rheumatic patients was significantly impacted, and such effect was persistent over time irrespective of public health measures to control the COVID-19 outbreak.
Our findings consistently demonstrated the need for psychological and social consideration to improve rheumatic patients' quality of life. Nevertheless, there is still a lot to be learned about the extent of COVID-19 impact on rheumatic patients and the implications it has on long-term disease outcomes.
COVID-19 大流行可能会增加风湿性疾病患者所经历的压力源。本研究旨在探讨大流行期间风湿患者的功能和心理社会状态，并评估其对生活质量的影响。
我们的时间序列研究包括一项以患者为中心的电子调查，在 2020 年 3 月至 8 月的不同时间点，对沙特阿拉伯的成年风湿患者进行抽样。患者报告的结果包括使用患者报告结局测量信息系统（PROMIS-29 概况 v2.1）测量的身体功能、焦虑、抑郁、疲劳、睡眠障碍、参与社会角色的能力以及疼痛干扰领域。
共纳入 1278 名受访者。结果显示患者的体验存在显著差异。我们的分析表明，风湿患者的身体福祉受到了显著影响，而且这种影响随着时间的推移持续存在，无论为控制 COVID-19 爆发而采取的公共卫生措施如何。
我们的研究结果一致表明，需要从心理和社会方面考虑，以提高风湿患者的生活质量。然而，对于 COVID-19 对风湿患者的影响程度及其对长期疾病结局的影响，仍有许多需要了解。
