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儿科至成人胰腺疾病患者的照护交接:照护和研究机会的建议。

Pediatric-to-Adult Transfer of Care in Patients With Pancreas Disease: Recommendations for Care and Research Opportunities.

机构信息

Nationwide Children's Hospital and The Ohio State University College of Medicine, Columbus, Ohio, USA.

The Ohio State University Wexner Medical Center, Columbus, Ohio, USA.

出版信息

Am J Gastroenterol. 2023 Mar 1;118(3):443-451. doi: 10.14309/ajg.0000000000001910. Epub 2022 Jul 21.

DOI:10.14309/ajg.0000000000001910
PMID:35862827
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10147498/
Abstract

Young adults who have experienced recurrent acute pancreatitis and chronic pancreatitis as children or adolescents are vulnerable to poor follow-up and disease management during the transfer from the pediatric to adult healthcare system. Although formalized transition programs for young adults have been developed and described for other disease conditions, no such program has been described for young adults with pancreatic disease. This document is the first expert opinion outlining the important aspects of a transitional care and transfer program tailored to youth with recurrent acute and chronic pancreatitis. We emphasize the unique needs of these patients as they transfer to adult health care and the need for further research. The goal of improved transitional care and transfer is to enhance the services provided to adolescents/young adults with pancreatic disease in both healthcare settings and improve continuity of follow-up care.

摘要

经历过儿童期或青少年期反复发作性急性胰腺炎和慢性胰腺炎的年轻人,在从儿科医疗系统向成人医疗系统过渡时,容易出现随访和疾病管理不佳的情况。尽管已经为其他疾病制定并描述了正式的青年过渡方案,但针对患有胰腺疾病的年轻人,尚无此类方案。本文是第一份专家意见,概述了为反复发作性急性和慢性胰腺炎的年轻人量身定制的过渡护理和转介计划的重要方面。我们强调了这些患者在向成人保健过渡时的独特需求,以及进一步研究的必要性。改善过渡护理和转介的目标是加强在医疗保健环境中为患有胰腺疾病的青少年/年轻人提供的服务,并改善后续护理的连续性。

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