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验证专为近期被诊断为前庭神经鞘瘤的讲印地语的患者设计的宾夕法尼亚听神经瘤生活质量量表(PANQOL)。

Validation of the Penn Acoustic Neuroma Quality of Life (PANQOL) Scale for Hindi-Speaking Patients Recently Diagnosed with Vestibular Schwannoma.

机构信息

Department of, India.

出版信息

Neurol India. 2022 May-Jun;70(3):978-982. doi: 10.4103/0028-3886.349775.

Abstract

BACKGROUND

The Penn Acoustic Neuroma Quality-of-Life (PANQOL) scale is a disease specific quality-of-life instrument for vestibular schwannoma, developed in English and subsequently validated in four major languages of the world. No such validated version of PANQOL exists for Hindi-speaking population.

OBJECTIVE

To translate and examine the validity of the PANQOL scale in a sample of Hindi-speaking patients recently diagnosed with vestibular schwannoma.

MATERIALS AND METHODS

A cross-sectional study was done at a corporate tertiary care hospital. The PANQOL questionnaire was translated into Hindi by a language expert according to the accepted rules of forward-backward translation. In total, 30 consecutive patients (n = 30) diagnosed with vestibular schwannoma between September 2017 and March 2018 were included in the study. Quality-of-life at the time of diagnosis was measured with the generic Short Form -36 (SF-36) and the disease-specific PANQOL questionnaires. The internal consistency and reliability of the PANQOL domains, as well as the relationship with SF-36 dimensions, were statistically analyzed.The PANQOL scores of the patients in the current study were compared with those of similar such published studies worldwide.

RESULTS

Mean age of the patients was 46.3 ΁ 13.25 years. The sex ratio of male to female patients was 19:11. The mean PANQOL total score was 71.6. All its domains had good internal consistency except pain. Most PANQOL domains were correlated with those of the SF-36 dimensions, with the exception of facial dysfunction domain.

CONCLUSIONS

Good internal consistencies and strong correlations between PANQOL domains and SF-36 dimensions in the current study support the validity of the PANQOL Hindi version.

摘要

背景

宾夕法尼亚听神经瘤生活质量(PANQOL)量表是一种用于前庭神经鞘瘤的特定疾病生活质量工具,最初以英文开发,随后在世界上四种主要语言中进行了验证。目前还没有针对讲印地语人群的经过验证的 PANQOL 版本。

目的

将 PANQOL 量表翻译成印地语,并在最近被诊断出患有前庭神经鞘瘤的讲印地语的患者样本中检验其有效性。

材料和方法

在一家企业的三级保健医院进行了一项横断面研究。PANQOL 问卷由一位语言专家根据公认的正向翻译和反向翻译规则翻译成印地语。共有 30 名(n=30)在 2017 年 9 月至 2018 年 3 月期间被诊断出患有前庭神经鞘瘤的连续患者被纳入研究。使用通用的 36 项简短健康调查问卷(SF-36)和特定疾病的 PANQOL 问卷来测量诊断时的生活质量。对 PANQOL 各领域的内部一致性和可靠性,以及与 SF-36 维度的关系进行了统计分析。将本研究中患者的 PANQOL 评分与世界各地类似的已发表研究进行了比较。

结果

患者的平均年龄为 46.3 ΁ 13.25 岁。男女患者的性别比例为 19:11。平均 PANQOL 总分为 71.6。除疼痛外,所有领域的内部一致性均较好。除面部功能障碍领域外,大多数 PANQOL 领域与 SF-36 维度相关。

结论

在本研究中,PANQOL 各领域的内部一致性良好,与 SF-36 维度之间存在较强的相关性,支持 PANQOL 印地语版本的有效性。

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