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远程医疗作为帕金森病护士个性化护理方法培训的未开发机遇。

Telemedicine as an Untapped Opportunity for Parkinson's Nurses Training in Personalized Care Approaches.

作者信息

van Munster Marlena, Stümpel Johanne, Clemens Timo, Czabanowska Katarzyna, Pedrosa David J, Mestre Tiago A

机构信息

Department of Neurology, University Hospital Marburg, 35043 Marburg, Germany.

Department of International Health, CAPHRI Care and Public Health Research Institute, Maastricht University, 6229 ER Maastricht, The Netherlands.

出版信息

J Pers Med. 2022 Jun 28;12(7):1057. doi: 10.3390/jpm12071057.

DOI:10.3390/jpm12071057
PMID:35887553
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9323181/
Abstract

(1) Background: Parkinson nurses (PN) take over important functions in the telemedical care of person's with Parkinson's disease (PwPs). This requires special competencies that have so far been largely unexplored. The aim of the article is to identify competencies of PN operating in a personalized care model. (2) Methods: This study employed a qualitative approach. Based on the competency framework for telenursing, PN were asked about their competencies using a qualitative online survey. (3) Results: The results show that PN need competencies on a personal and organizational level, as well as in the relationship with PwPs. PN have developed these skills through professional exchange, training, and personal experience. In addition, both hindering and beneficial factors for the development of competencies could be identified. (4) Conclusions: Competency development for telemedical care is complex and must be designed and promoted in a targeted manner.

摘要

(1) 背景:帕金森病护士(PN)在帕金森病患者(PwP)的远程医疗护理中承担着重要职能。这需要特殊的能力,而这些能力迄今为止在很大程度上尚未得到探索。本文的目的是确定在个性化护理模式下工作的PN的能力。(2) 方法:本研究采用定性研究方法。基于远程护理能力框架,通过定性在线调查询问PN关于他们的能力。(3) 结果:结果表明,PN在个人和组织层面以及与PwP的关系方面都需要能力。PN通过专业交流、培训和个人经验培养了这些技能。此外,还可以识别出能力发展的阻碍因素和有利因素。(4) 结论:远程医疗护理的能力发展是复杂的,必须有针对性地进行设计和推广。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/506c/9323181/f662223761f6/jpm-12-01057-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/506c/9323181/f662223761f6/jpm-12-01057-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/506c/9323181/f662223761f6/jpm-12-01057-g001.jpg

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Geriatrics (Basel). 2022 Apr 7;7(2):46. doi: 10.3390/geriatrics7020046.
2
Co-designing a digital companion with people living with Parkinson's to support self-care in a personalized way: The eCARE-PD Study.与帕金森病患者共同设计一款数字伴侣,以个性化方式支持自我护理:eCARE-PD研究。
Digit Health. 2022 Feb 25;8:20552076221081695. doi: 10.1177/20552076221081695. eCollection 2022 Jan-Dec.
3
Moving towards Integrated and Personalized Care in Parkinson's Disease: A Framework Proposal for Training Parkinson Nurses.
迈向帕金森病的综合与个性化护理:帕金森病护士培训框架提案
J Pers Med. 2021 Jun 30;11(7):623. doi: 10.3390/jpm11070623.
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The state of telemedicine for persons with Parkinson's disease.帕金森病患者的远程医疗现状。
Curr Opin Neurol. 2021 Aug 1;34(4):589-597. doi: 10.1097/WCO.0000000000000953.
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Disparities in Patient-Centered Communication via Telemedicine.远程医疗中的以患者为中心的沟通差异。
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Parkinson's disease.帕金森病。
Lancet. 2021 Jun 12;397(10291):2284-2303. doi: 10.1016/S0140-6736(21)00218-X. Epub 2021 Apr 10.
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Global Perspective on Telemedicine for Parkinson's Disease.全球视角下的帕金森病远程医疗。
J Parkinsons Dis. 2021;11(s1):S11-S18. doi: 10.3233/JPD-202411.
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Personalized Care Management for Persons with Parkinson's Disease.帕金森病患者的个性化护理管理。
J Parkinsons Dis. 2020;10(s1):S11-S20. doi: 10.3233/JPD-202126.
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A New Day: The Role of Telemedicine in Reshaping Care for Persons With Movement Disorders.新的一天:远程医疗在重塑运动障碍患者护理中的作用。
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Clin Park Relat Disord. 2020;3:100070. doi: 10.1016/j.prdoa.2020.100070. Epub 2020 Aug 19.