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“维系希望”:为晚期癌症的拉丁裔患者提供咨询时面临的挑战

"Maintaining hope:" challenges in counseling latino patients with advanced cancer.

作者信息

Costas-Muñiz Rosario, Garduño-Ortega Olga, Torres-Blasco Normarie, Castro-Figueroa Eida, Gany Francesca

机构信息

Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center, New York, NY.

Weill Cornell Medical College, New York, NY.

出版信息

J Psychosoc Oncol Res Pract. 2020 Jul 28;2(3):e028. doi: 10.1097/OR9.0000000000000028. eCollection 2020 Oct.

Abstract

BACKGROUND

Latino cancer patients are at risk of poor psychological adjustment. Therapeutic effectiveness in treating Latino cancer patients with advanced cancer requires managing distress, therapeutic skill, and cultural competency. This mixed-methods study explored mental health providers' perceptions of the challenging aspects of counseling and caring for Latino patients with advanced cancer.

METHODS

Mental health providers providing services to Latino or Hispanic cancer patients received an emailed web-based survey with open- and closed-ended questions. Providers included psychiatrists, psychologists, social workers, counselors, and other mental health professionals. We invited 154 providers to participate from July 2015 to January 2017. One hundred and four accessed the survey, and 66 eligible providers responded, for a response rate of 43%. Analyses were used to explore whether clinical experience factors and training characteristics were associated with perceiving conversations about cancer (diagnosis, prognosis, and end-of-life) as challenging. Second, the challenging aspects of these conversations were explored qualitatively. Four independent coders coded responses; an inductive content analysis was utilized to analyze the data.

RESULTS

Mental health providers describe encountering many challenges in their therapeutic discussions with Latino cancer patients.

CONCLUSIONS

It is imperative to understand the factors associated with the perceived difficulty of these conversations, as well as the characteristics of these conversations, to develop culturally sensitive interventions and programs for patients and training interventions for providers.

摘要

背景

拉丁裔癌症患者存在心理调适不良的风险。对晚期癌症的拉丁裔癌症患者进行治疗时,治疗效果需要应对患者的痛苦、具备治疗技巧以及文化胜任力。这项混合方法研究探讨了心理健康服务提供者对为晚期癌症拉丁裔患者提供咨询和护理时面临的挑战的看法。

方法

为拉丁裔或西班牙裔癌症患者提供服务的心理健康服务提供者收到了一份通过电子邮件发送的基于网络的调查问卷,其中包含开放式和封闭式问题。提供者包括精神科医生、心理学家、社会工作者、咨询师和其他心理健康专业人员。我们在2015年7月至2017年1月期间邀请了154名提供者参与。104人访问了该调查问卷,66名符合条件的提供者做出了回应,回应率为43%。分析用于探讨临床经验因素和培训特点是否与将关于癌症(诊断、预后和临终)的谈话视为具有挑战性相关。其次,对这些谈话中具有挑战性的方面进行了定性探讨。四名独立编码员对回答进行编码;采用归纳式内容分析法对数据进行分析。

结果

心理健康服务提供者表示,在与拉丁裔癌症患者的治疗性讨论中遇到了许多挑战。

结论

必须了解与这些谈话的感知难度相关的因素以及这些谈话的特点,以便为患者制定具有文化敏感性的干预措施和项目,并为提供者制定培训干预措施。

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