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姑息治疗中癌症患者家庭照顾者的需求与期望:一项研究方案

Needs and expectations of family caregivers of cancer patients in palliative care: A study protocol.

作者信息

Fernandes Júlio Belo, Domingos Josefa, Castro Cidália, Simões Aida, Fernandes Sónia, Almeida Ana Silva, Bernardes Catarina, Miranda Luís, Risso Sandra, Ferreira Rogério, Baixinho Cristina Lavareda, Silvestre Milene, Godinho Catarina

机构信息

Escola Superior de Saúde Egas Moniz, Almada, Portugal.

Grupo de Patologia Médica, Nutrição e Exercício Clínico (PaMNEC), Almada, Portugal.

出版信息

Front Psychol. 2023 Jan 6;13:1071711. doi: 10.3389/fpsyg.2022.1071711. eCollection 2022.

Abstract

Cancer has an associated burden that continues to grow, affecting patients, family caregivers, and the individual's community. The family caregivers' unmet needs may harmfully jeopardize their well-being and the patient's health outcomes. Therefore, it is essential to understand the needs and expectations of family caregivers of cancer patients to develop and improve care practices. The present study aims to explore the needs and expectations of family caregivers of cancer patients in palliative care. This qualitative, descriptive exploratory study will use purposive sampling to recruit family caregivers and healthcare professionals from the palliative care units of two hospital centers in Lisbon and Tagus Valley. First, the Focus group will be performed until data saturation occurs. Then, a conventional thematic analysis will be applied to analyze data with the help of the coding software QDA Miner Lite database. This study's findings will help identify gaps in care and provide data that can support healthcare professionals in providing evidence-based centered care to family caregivers. It can also generate knowledge that may help stakeholders to develop a comprehensive support system for cancer survivors in palliative care and their family caregivers.

摘要

癌症带来的负担持续增加,影响着患者、家庭护理人员以及患者所在的社区。家庭护理人员未得到满足的需求可能会对他们自身的福祉以及患者的健康结局产生有害影响。因此,了解癌症患者家庭护理人员的需求和期望对于制定和改进护理措施至关重要。本研究旨在探讨姑息治疗中癌症患者家庭护理人员的需求和期望。这项定性、描述性的探索性研究将采用目的抽样法,从里斯本和塔霍河谷两个医院中心的姑息治疗科室招募家庭护理人员和医疗保健专业人员。首先,将进行焦点小组访谈,直至数据饱和。然后,借助编码软件QDA Miner Lite数据库,应用常规主题分析法对数据进行分析。本研究的结果将有助于找出护理方面的差距,并提供数据支持医疗保健专业人员为家庭护理人员提供以证据为基础的核心护理。它还可以产生相关知识,帮助利益相关者为姑息治疗中的癌症幸存者及其家庭护理人员建立一个全面的支持系统。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/883c/9853914/fd0a7ee9a499/fpsyg-13-1071711-g001.jpg

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