Lyng Kristian D, Larsen Jesper B, Birnie Kathryn A, Stinson Jennifer, Hoegh Morten S, Palsson Thorvaldur S, Olesen Anne E, Arendt-Nielsen Lars, Ehlers Lars H, Fonager Kirsten, Jensen Martin B, Würtzen Hanne, Poulin Patricia A, Handberg Gitte, Ziegler Connie, Møller Lars B, Olsen Judi, Heise Lotte, Rathleff Michael S
Department of Health Science and Technology, Faculty of Medicine, Aalborg University, Denmark.
Center for General Practice at Aalborg University, Department of Clinical Medicine, Aalborg University.
Scand J Pain. 2022 Aug 2;23(2):402-415. doi: 10.1515/sjpain-2022-0019. Print 2023 Apr 25.
Patient and stakeholder engagements in research have increasingly gained attention in healthcare and healthcare-related research. A common and rigorous approach to establish research priorities based on input from people and stakeholders is the James Lind Alliance Priority Setting Partnership (JLA-PSP). The aim of this study was to establish research priorities for chronic musculoskeletal (MSK) pain by engaging with people living with chronic MSK pain, relatives to people living with chronic MSK pain, healthcare professionals (HCP), and researchers working with chronic MSK pain.
This JLA-PSP included a nation-wide survey in Denmark, an interim prioritisation, and an online consensus building workshop. The information gained from this was the basis for developing the final list of specific research priorities within chronic MSK pain.
In the initial survey, 1010 respondents (91% people living with chronic MSK pain/relatives, 9% HCPs/researchers) submitted 3121 potential questions. These were summarised into 19 main themes and 36 sub-themes. In the interim prioritisation exercise, 51% people living with pain/relatives and 49% HCPs/researchers reduced the list to 33 research questions prior to the final priority setting workshop. 23 participants attended the online workshop (12 people/relatives, 10 HCPs, and 1 researcher) who reached consensus for the most important research priorities after two rounds of discussion of each question.
This study identified several specific research questions generated by people living with chronic MSK pain, relatives, HCPs, and researchers. The stakeholders proposed prioritization of the healthcare system's ability to support patients, focus on developing coherent pathways between sectors and education for both patients and HCP. These research questions can form the basis for future studies, funders, and be used to align research with end-users' priorities.
患者及利益相关者参与研究在医疗保健及相关研究中日益受到关注。一种基于患者及利益相关者意见来确定研究重点的通用且严谨的方法是詹姆斯·林德联盟优先事项设定合作项目（JLA - PSP）。本研究的目的是通过让慢性肌肉骨骼（MSK）疼痛患者、慢性MSK疼痛患者的亲属、医疗保健专业人员（HCP）以及从事慢性MSK疼痛研究的人员参与，来确定慢性MSK疼痛的研究重点。
该JLA - PSP包括在丹麦进行的一项全国性调查、中期优先事项排序以及一次在线共识达成研讨会。由此获得的信息是制定慢性MSK疼痛具体研究重点最终清单的基础。
在初始调查中，1010名受访者（91%为慢性MSK疼痛患者/亲属，9%为HCP/研究人员）提交了3121个潜在问题。这些问题被归纳为19个主要主题和36个子主题。在中期优先事项排序活动中，51%的疼痛患者/亲属和49%的HCP/研究人员在最终优先事项设定研讨会之前将清单缩减至33个研究问题。23名参与者参加在线研讨会（12名患者/亲属、10名HCP和1名研究人员），他们在对每个问题进行两轮讨论后就最重要的研究重点达成了共识。
本研究确定了由慢性MSK疼痛患者、亲属、HCP和研究人员提出的若干具体研究问题。利益相关者提议优先考虑医疗保健系统支持患者的能力，重点是为患者和HCP制定部门间连贯的路径以及开展教育。这些研究问题可为未来研究、资助者提供基础，并用于使研究与最终用户的优先事项保持一致。
