State Key Laboratory of Oral Diseases & National Clinical Research Center for Oral Diseases & Department of Oral Maxillofacial Surgery, West China Hospital of Stomatology, Sichuan University, Chengdu, China.
Cleft Palate Craniofac J. 2024 Jan;61(1):110-118. doi: 10.1177/10556656221118425. Epub 2022 Aug 2.
This study examined the posttraumatic growth (PTG) about parents of children with cleft lip and/or palate (CL/P) and the correlates of PTG. A cross-sectional study. Parents (N = 388) of children with isolated CL/P (ages 3 months-18 years) who had at least one cleft surgery within an oral and maxillofacial surgery department of a university-affiliated tertiary hospital in a provincial capital in southwest China. Demographic information questionnaire, The Posttraumatic Growth Inventory, Simplified Coping Style Questionnaire, and Social Support Rating Scale were used for data collection. Parents' mean PTG score was in the moderate range (M = 65.7, SD = 13.73). PTG differed regarding the participants' sex, ethnicity, and educational background. Pearson's correlation analysis revealed that positive coping ( = 0.43, < .01), negative coping ( = 0.13, < .01), and social support ( = 0.26, < .01) were positively correlated with PTG. Multiple regression model showed that 20.6% ( < .001) of the variance in PTG was explained by higher positive coping (β = 0.35, < .001), greater social support (β = 0.13, = .01), and for cleft lip compared to cleft palate (β = -0.14, ≤ .01), with no variance difference for cleft lip and palate. Parents of children with CL/P had moderate PTG. Potentially modifiable correlates of PTG suggest interventions to enhance parental positive coping and social support may increase PTG. Further studies are needed to confirm the PTG level and its affecting factors of parents of children with CL/P.
本研究旨在探讨唇腭裂（CL/P）患儿父母的创伤后成长（PTG）及其相关因素。这是一项横断面研究。研究对象为来自中国西南省会城市一家大学附属医院口腔颌面外科的 388 名患有单纯性 CL/P（年龄 3 个月至 18 岁）的儿童的父母。采用人口统计学信息问卷、创伤后成长量表、简易应对方式问卷和社会支持评定量表进行数据收集。父母的平均 PTG 评分为中等水平（M=65.7，SD=13.73）。PTG 在参与者的性别、种族和教育背景方面存在差异。Pearson 相关分析显示，积极应对（ = 0.43， < .01）、消极应对（ = 0.13， < .01）和社会支持（ = 0.26， < .01）与 PTG 呈正相关。多元回归模型显示，PTG 的 20.6%（ < .001）可由较高的积极应对（β = 0.35， < .001）、更大的社会支持（β = 0.13， = .01）和与唇裂相比腭裂（β = -0.14， ≤ .01）来解释，而唇裂和腭裂之间不存在方差差异。CL/P 患儿的父母有中等程度的 PTG。PTG 的潜在可调节因素表明，增强父母的积极应对和社会支持的干预措施可能会增加 PTG。需要进一步的研究来确认 CL/P 患儿父母的 PTG 水平及其影响因素。
