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“我们正在尽最大努力缩小差距”——南非自闭症谱系障碍教育服务的服务提供商观点。

"We are doing the best we can to bridge the gap" - service provider perspectives of educational services for autism spectrum disorder in South Africa.

作者信息

Pillay Sarosha, Duncan Madeleine, de Vries Petrus J

机构信息

Department of Health and Rehabilitation Sciences, University of Cape Town, Cape Town, South Africa.

Centre for Autism Research in Africa, Division of Child & Adolescent Psychiatry, University of Cape Town, Cape Town, South Africa.

出版信息

Front Psychiatry. 2022 Jul 19;13:907093. doi: 10.3389/fpsyt.2022.907093. eCollection 2022.

Abstract

BACKGROUND

The South African education system is increasingly unable to meet the growing needs of children with autism spectrum disorder (ASD). Recent studies in the Western Cape, one of the better resourced provinces in South Africa, showed that the pathway to care for children with ASD was an inconsistent and lengthy process, and that many children with ASD waited for extended periods to get access to an appropriate school placement. It is therefore clear that scalable and sustainable solutions are required to improve access to appropriate education for children with ASD.

METHODS

Here we performed a qualitative study using thematic analysis of ten multi-sectorial ASD service provider interviews in the Western Cape Province to examine provider perspectives and proposed solutions to meet the educational needs of children with ASD.

RESULTS

Provider perspectives were grouped in three categories: "bridging the gap across the spectrum and lifespan", "gaps to bridge", and "building bridges". The first category captured provider perspectives of the service-related needs inherent to a diagnosis of ASD. The second category summarized service provider views of the challenges associated with providing services to children with ASD and the third category captured provider perspectives on potential actions to improve ASD education services delivery in the province. The overarching theme that emerged was "We're doing the best we can to bridge the gap".

CONCLUSION

Participants provided ten key recommendations for service strengthening that may lead to contextually relevant innovations to meet the educational needs of children with ASD in the province. Findings from this study has direct relevance to other South African provinces and may have relevance to improve pathways and reduce service delivery gaps also in other low-and-middle-income countries.

摘要

背景

南非教育系统越来越无法满足自闭症谱系障碍(ASD)儿童不断增长的需求。最近在西开普省(南非资源较丰富的省份之一)进行的研究表明,为ASD儿童提供护理的途径是一个不一致且漫长的过程,许多ASD儿童要等待很长时间才能获得合适的学校安置。因此,显然需要可扩展且可持续的解决方案,以改善ASD儿童获得适当教育的机会。

方法

在此,我们进行了一项定性研究,对西开普省十个多部门ASD服务提供商的访谈进行主题分析,以审视提供商的观点以及为满足ASD儿童教育需求而提出的解决方案。

结果

提供商的观点分为三类:“跨越谱系和生命周期的差距弥合”、“需要弥合的差距”以及“搭建桥梁”。第一类涵盖了提供商对ASD诊断所固有的与服务相关需求的看法。第二类总结了服务提供商对为ASD儿童提供服务所面临挑战的看法,第三类则体现了提供商对改善该省ASD教育服务提供的潜在行动的观点。浮现出的总体主题是“我们正在尽最大努力弥合差距”。

结论

参与者提出了十条加强服务的关键建议,这些建议可能会带来与当地情况相关的创新,以满足该省ASD儿童的教育需求。本研究的结果与南非其他省份直接相关,也可能与改善其他低收入和中等收入国家的途径以及减少服务提供差距相关。

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