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与其他癌症类型相比,临终关怀肺癌患者的家庭护理体验。

Family caregiving experiences with hospice lung cancer patients compared to other cancer types.

机构信息

Division of Palliative Medicine, Department of Medicine, Washington University in St. Louis, Goldfarb School of Nursing, St. Louis, Missouri, USA.

Department of Biobehavioral Health Sciences, School of Nursing, Department of Biostatistics, Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.

出版信息

J Psychosoc Oncol. 2023;41(2):210-225. doi: 10.1080/07347332.2022.2101907. Epub 2022 Aug 5.

Abstract

BACKGROUND

Family caregivers of cancer patients are very involved in communication with healthcare teams; however, little is known about their experiences. Limited information is known about how the type of cancer patients have impact caregiving experiences.

OBJECTIVES

This study seeks to compare the caregiving experience of caregivers of hospice lung cancer patients with hospice caregivers of patients with all other cancer types.

METHOD

This study is based on a secondary analysis of data generated from a parent study evaluating a behavioral intervention with caregivers of hospice cancer patients.

RESULTS

When comparing caregiving experiences by patient diagnosis, significant differences were found in caregivers of hospice lung cancer demographics and experiences with caregiver-centered communication. Specifically, caregivers of lung cancer patients have significantly more trouble with exchange of information, fostering relationships, and decision making with their hospice team.

CONCLUSION

More research is needed to understand the impact of lung cancer on caregiver centered communication and the necessary interventions required to address these issues.

摘要

背景

癌症患者的家庭照料者与医疗团队的沟通非常密切;然而,他们的经验却鲜为人知。关于癌症患者类型如何影响照料者的经验,我们知之甚少。

目的

本研究旨在比较肺癌和其他所有癌症类型的临终关怀患者的照料者的照料体验。

方法

本研究基于对评估临终关怀癌症患者照料者行为干预的原始研究数据的二次分析。

结果

通过患者诊断比较照料体验时,在临终关怀肺癌患者的照料者人口统计学特征和以照料者为中心的沟通体验方面存在显著差异。具体而言,肺癌患者的照料者在与临终关怀团队交换信息、建立关系和决策方面存在明显更多的困难。

结论

需要进一步研究以了解肺癌对以照料者为中心的沟通的影响,以及解决这些问题所需的必要干预措施。

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本文引用的文献

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Assessing the Reliability and Validity of a Brief Measure of Caregiver Quality of Life.评估 caregiver生活质量简短测量工具的信度和效度。
J Pain Symptom Manage. 2019 Nov;58(5):871-877. doi: 10.1016/j.jpainsymman.2019.07.023. Epub 2019 Jul 31.
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Family caregivers' perspectives on communication with cancer care providers.癌症照护者与医疗提供者间沟通之家庭照护者观点。
J Psychosoc Oncol. 2019 Nov-Dec;37(6):777-790. doi: 10.1080/07347332.2019.1624674. Epub 2019 Jun 16.

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