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本文引用的文献

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Reliability and Validity Testing of the Caregiver-Centered Communication Questionnaire. caregiver-centered communication questionnaire 的信度和效度测试
J Nurs Meas. 2023 Sep 1;31(3):439-447. doi: 10.1891/JNM-2022-0044. Epub 2022 Jun 9.
2
Psychological burden in family caregivers of patients with advanced cancer at initiation of specialist inpatient palliative care.晚期癌症患者接受专科住院姑息治疗时,其家庭照顾者的心理负担。
BMC Palliat Care. 2019 Nov 18;18(1):102. doi: 10.1186/s12904-019-0469-7.
3
Psychosocial interventions for informal caregivers of lung cancer patients: A systematic review.肺癌患者非专业照护者的社会心理干预措施:系统评价。
Psychooncology. 2020 Feb;29(2):251-262. doi: 10.1002/pon.5271. Epub 2019 Nov 24.
4
Design and Preliminary Testing of the Caregiver-Centered Communication Questionnaire (CCCQ).以照顾者为中心的沟通问卷(CCCQ)的设计和初步测试。
J Palliat Care. 2020 Jul;35(3):154-160. doi: 10.1177/0825859719887239. Epub 2019 Nov 7.
5
Assessing the Reliability and Validity of a Brief Measure of Caregiver Quality of Life.评估 caregiver生活质量简短测量工具的信度和效度。
J Pain Symptom Manage. 2019 Nov;58(5):871-877. doi: 10.1016/j.jpainsymman.2019.07.023. Epub 2019 Jul 31.
6
Family caregivers' perspectives on communication with cancer care providers.癌症照护者与医疗提供者间沟通之家庭照护者观点。
J Psychosoc Oncol. 2019 Nov-Dec;37(6):777-790. doi: 10.1080/07347332.2019.1624674. Epub 2019 Jun 16.
7
Health Disparities in Hospice Utilization and Length of Stay in a Diverse Population With Lung Cancer.肺癌患者多样化群体中临终关怀利用情况及住院时间的健康差异
Am J Hosp Palliat Care. 2019 Jun;36(6):513-518. doi: 10.1177/1049909118823721. Epub 2019 Jan 16.
8
Effectiveness of an intervention to improve supportive care for family caregivers of patients with lung cancer: study protocol for a randomized controlled trial.一项改善肺癌患者家庭照顾者支持性护理的干预措施的有效性:一项随机对照试验的研究方案
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Advanced cancer caregiving as a risk for major depressive episodes and generalized anxiety disorder.晚期癌症患者的照护与重度抑郁发作和广泛性焦虑障碍的风险。
Psychooncology. 2018 Jan;27(1):243-249. doi: 10.1002/pon.4441. Epub 2017 May 16.
10
The Effect of Cancer Patients' and Their Family Caregivers' Physical and Emotional Symptoms on Caregiver Burden.癌症患者及其家庭照顾者的身体和情绪症状对照顾者负担的影响。
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与其他癌症类型相比,临终关怀肺癌患者的家庭护理体验。

Family caregiving experiences with hospice lung cancer patients compared to other cancer types.

机构信息

Division of Palliative Medicine, Department of Medicine, Washington University in St. Louis, Goldfarb School of Nursing, St. Louis, Missouri, USA.

Department of Biobehavioral Health Sciences, School of Nursing, Department of Biostatistics, Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania, USA.

出版信息

J Psychosoc Oncol. 2023;41(2):210-225. doi: 10.1080/07347332.2022.2101907. Epub 2022 Aug 5.

DOI:10.1080/07347332.2022.2101907
PMID:35930381
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9899294/
Abstract

BACKGROUND

Family caregivers of cancer patients are very involved in communication with healthcare teams; however, little is known about their experiences. Limited information is known about how the type of cancer patients have impact caregiving experiences.

OBJECTIVES

This study seeks to compare the caregiving experience of caregivers of hospice lung cancer patients with hospice caregivers of patients with all other cancer types.

METHOD

This study is based on a secondary analysis of data generated from a parent study evaluating a behavioral intervention with caregivers of hospice cancer patients.

RESULTS

When comparing caregiving experiences by patient diagnosis, significant differences were found in caregivers of hospice lung cancer demographics and experiences with caregiver-centered communication. Specifically, caregivers of lung cancer patients have significantly more trouble with exchange of information, fostering relationships, and decision making with their hospice team.

CONCLUSION

More research is needed to understand the impact of lung cancer on caregiver centered communication and the necessary interventions required to address these issues.

摘要

背景

癌症患者的家庭照料者与医疗团队的沟通非常密切;然而,他们的经验却鲜为人知。关于癌症患者类型如何影响照料者的经验,我们知之甚少。

目的

本研究旨在比较肺癌和其他所有癌症类型的临终关怀患者的照料者的照料体验。

方法

本研究基于对评估临终关怀癌症患者照料者行为干预的原始研究数据的二次分析。

结果

通过患者诊断比较照料体验时,在临终关怀肺癌患者的照料者人口统计学特征和以照料者为中心的沟通体验方面存在显著差异。具体而言,肺癌患者的照料者在与临终关怀团队交换信息、建立关系和决策方面存在明显更多的困难。

结论

需要进一步研究以了解肺癌对以照料者为中心的沟通的影响,以及解决这些问题所需的必要干预措施。