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遗传咨询师是否准备好为现役军人提供咨询服务?遗传咨询师的自我效能感、咨询技巧以及对军事政策的了解情况调查。

Are genetic counselors prepared to counsel active-duty service members? A survey of genetic counselors' self-efficacy, counseling techniques, and knowledge of military policy.

机构信息

Master's in Genetic Counseling Training Program, Baltimore, Maryland, USA.

Department of Pediatrics, Uniformed Services University of the Health Sciences, Bethesda, Maryland, USA.

出版信息

J Genet Couns. 2022 Dec;31(6):1363-1372. doi: 10.1002/jgc4.1611. Epub 2022 Aug 11.

Abstract

Given the expected rise in genomic sequencing projects within the US Military and the increased availability of genetic testing to the United States as a whole, current and prospective active-duty service members (SMs) may undergo genetic counseling services in the civilian sector for pre-test and post-test counseling. The overall goal of this study was to better understand genetic counselors' preparedness to address military-specific policies and psychosocial needs of patients from this underrepresented population. Members of the National Society of Genetic Counselors were asked to complete a four-part survey including demographic information, Likert scale questions to separately rate self-efficacy when working with civilians and SMs, case scenarios with multiple-choice options and open-ended responses to assess knowledge of military policy, and open-ended questions regarding psychosocial scenarios related to military service. Eighty-eight responses were analyzed using Microsoft Office Excel for the qualitive thematic analysis and SPSS/RStudio for the quantitative data. While over 75% (n = 69/88, SD = 0.48) of surveyed genetic counselors scored 4 of 4 on knowledge of military policy and reported similarly high levels of self-efficacy when working with SMs (mean = 26.77 out of 30, SD = 4.15) and the general population (mean = 27.99 out of 30, SD = 4.31), the qualitative data suggested an alternative perspective. Up to 57% (n = 50/88) of responses were scored as expressing low confidence concerning knowledge of military policy. One potential explanation for this uncertainty may be due to participants reporting that they never (69.32% (n = 61/88]) or are unsure if (12.50% (n = 11/88]) they received training related to providing counseling services to SMs. We suggest the establishment of educational initiatives for genetic counselors focusing on how to discuss genetic testing with SMs in relation to their health and safety, well-being, and potential employment implications.

摘要

鉴于美国军方预计会增加基因组测序项目,以及整个美国对基因检测的可及性增加,现役和未来的现役军人(SM)可能会在民用部门接受遗传咨询服务,进行测试前和测试后的咨询。这项研究的总体目标是更好地了解遗传咨询师为解决这一代表性不足人群的特定军事政策和心理社会需求而做好的准备。要求全国遗传咨询师协会的成员完成四项部分调查,包括人口统计信息、分别评估与平民和 SM 合作时的自我效能的李克特量表问题、包含多项选择选项和开放式回答的案例场景,以评估对军事政策的了解,以及与军事服务相关的心理社会场景的开放式问题。使用 Microsoft Office Excel 对 88 份回复进行了定性主题分析,使用 SPSS/RStudio 对定量数据进行了分析。虽然超过 75%(n=69/88,SD=0.48)的遗传咨询师在军事政策知识方面的评分均为 4 分,并且报告在与 SM 合作时具有相似的高水平自我效能(平均值=26.77,满分 30,SD=4.15)和普通人群(平均值=27.99,满分 30,SD=4.31),但定性数据表明存在另一种观点。多达 57%(n=50/88)的回复评分表示对军事政策知识缺乏信心。这种不确定性的一个潜在解释可能是由于参与者报告说他们从未(69.32%(n=61/88))或不确定是否(12.50%(n=11/88))接受过与向 SM 提供咨询服务相关的培训。我们建议为遗传咨询师制定教育计划,重点讨论如何根据 SM 的健康、安全、福利和潜在就业影响来讨论基因检测。

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