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移动和在线消费者工具筛查自闭症并不能促进公平。

Mobile and online consumer tools to screen for autism do not promote equity.

机构信息

Oregon Health & Science University, USA.

UMass Chan Medical School, USA.

出版信息

Autism. 2023 Apr;27(3):714-722. doi: 10.1177/13623613221114280. Epub 2022 Aug 11.

DOI:10.1177/13623613221114280
PMID:35957514
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9918600/
Abstract

Many parents wonder if their child might have autism. Many parents use their smartphones to answer health questions. We asked, "How easy or hard is it for parents to use their smartphones to find 'tools' to test their child for signs of autism?" After doing pretend parent searches, we found that only one in 10 search results were tools to test children for autism. These tools were not designed for parents who have low income or other challenges such as low literacy skills, low English proficiency, or not being tech-savvy.

摘要

许多父母想知道他们的孩子是否患有自闭症。许多父母使用智能手机来回答健康问题。我们问道:“父母使用智能手机寻找‘工具’来测试孩子是否有自闭症迹象,这有多容易或多困难?”在进行了假装父母的搜索后,我们发现只有十分之一的搜索结果是用于测试儿童自闭症的工具。这些工具并非专为收入较低或其他挑战(如低识字能力、低英语水平或不精通技术)的父母设计。

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Autism. 2025 Aug 12:13623613251360276. doi: 10.1177/13623613251360276.
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J Autism Dev Disord. 2024 Jun 4. doi: 10.1007/s10803-024-06427-x.
3
Provider perspectives on equity in use of mobile health autism screening tools.提供者对移动医疗自闭症筛查工具使用公平性的看法。
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本文引用的文献

1
Prevalence and Characteristics of Autism Spectrum Disorder Among Children Aged 8 Years - Autism and Developmental Disabilities Monitoring Network, 11 Sites, United States, 2018.8 岁儿童自闭症谱系障碍的流行率和特征 - 自闭症和发育障碍监测网络,美国 11 个地点,2018 年。
MMWR Surveill Summ. 2021 Dec 3;70(11):1-16. doi: 10.15585/mmwr.ss7011a1.
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Recommendations for Health Equity and Virtual Care Arising From the COVID-19 Pandemic: Narrative Review.COVID-19大流行引发的健康公平与虚拟医疗建议:叙述性综述
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Improving autism and developmental screening and referral in US primary care practices serving Latinos.在美国为拉丁裔提供服务的初级医疗实践中改善自闭症和发育筛查及转诊工作。
Autism. 2021 Jan;25(1):288-299. doi: 10.1177/1362361320957461. Epub 2020 Sep 14.
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Online Health Information Seeking by Parents for Their Children: Systematic Review and Agenda for Further Research.家长为子女在线搜索健康信息:系统评价及进一步研究议程。
J Med Internet Res. 2020 Aug 25;22(8):e19985. doi: 10.2196/19985.
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Adherence to screening and referral guidelines for autism spectrum disorder in toddlers in pediatric primary care.在儿科初级保健中,坚持对幼儿自闭症谱系障碍进行筛查和转介的指导原则。
PLoS One. 2020 May 7;15(5):e0232335. doi: 10.1371/journal.pone.0232335. eCollection 2020.
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Trends in Pediatricians' Developmental Screening: 2002-2016.儿科医生发育筛查趋势:2002-2016 年。
Pediatrics. 2020 Apr;145(4). doi: 10.1542/peds.2019-0851. Epub 2020 Mar 2.
7
Identification, Evaluation, and Management of Children With Autism Spectrum Disorder.自闭症谱系障碍儿童的识别、评估和管理。
Pediatrics. 2020 Jan;145(1). doi: 10.1542/peds.2019-3447. Epub 2019 Dec 16.
8
Parenting apps review: in search of good quality apps.育儿应用程序综述:寻找高质量应用程序
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9
Good intentions are not enough: how informatics interventions can worsen inequality.好心未必有好报:信息学干预措施如何加剧不平等。
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