Department of Psychiatry and Behavior Sciences, Baylor College of Medicine, 1977 Butler Blvd., Suite 4-100, Houston, TX 77030, USA.
International Misophonia Research Network, New York, NY, USA.
J Affect Disord. 2022 Nov 1;316:76-82. doi: 10.1016/j.jad.2022.08.020. Epub 2022 Aug 12.
Misophonia is a complex disorder characterized by a heightened reaction to certain sounds and associated stimuli. While there is no uniformly accepted treatment to date, different intervention approaches are being investigated. Individual's perceptions of different misophonia treatment methods may affect compliance and satisfaction with treatment options. We sought to gather data on patient perceptions of currently available misophonia treatments.
Using an online survey, we collected data about treatment preferences, treatment usage, and diagnosis history from parents of children with misophonia (N = 141) and adults with misophonia (N = 252).
Most respondents were not satisfied with misophonia treatments that they or their children had previously received. Audiologic interventions including active and passive noise cancelling and lifestyle modifications were rated as most appropriate for treatment of misophonia by both parent and adult respondents.
Because of the descriptive nature of this study, we chose to use a completer-only approach to ensure the data reflect the true responses of participants, though this did result in a meaningful proportion of missing data. Participants were selected through convenience sampling and responses were self-reported. Individuals with more severe misophonia symptoms may be more likely to participate and complete a research survey.
Most interventions are considered inappropriate by parents of youth with misophonia and by adults with misophonia. This should be interpreted in the light of a general lack of misophonia-specific interventions. Findings suggest dissatisfaction with currently available treatments and an opportunity for development of effective treatment strategies corresponding to participants' preferences. Deeper understanding of treatment preferences has the potential to guide future treatment development.
厌声症是一种复杂的障碍，其特征是对某些声音和相关刺激产生过度反应。虽然迄今为止还没有普遍接受的治疗方法，但不同的干预方法正在被研究。个人对不同的厌声症治疗方法的看法可能会影响对治疗选择的依从性和满意度。我们旨在收集有关患者对当前可用的厌声症治疗方法的看法的数据。
我们使用在线调查收集了有厌声症的儿童的父母（N=141）和成年人（N=252）的治疗偏好、治疗使用情况和诊断史的数据。
大多数受访者对他们自己或他们的孩子之前接受的厌声症治疗不满意。听觉干预，包括主动和被动降噪以及生活方式的改变，被父母和成年受访者评为最适合治疗厌声症的方法。
由于本研究的描述性性质，我们选择了仅完成者方法，以确保数据反映参与者的真实反应，尽管这确实导致了相当一部分数据缺失。参与者是通过方便抽样选择的，并且反应是自我报告的。患有更严重厌声症症状的个体可能更愿意参与并完成研究调查。
大多数干预措施被有厌声症的青年的父母和成年厌声症患者认为不适当。这应该结合缺乏厌声症特异性干预措施来解释。研究结果表明，目前可用的治疗方法不满意，有机会根据参与者的偏好制定有效的治疗策略。对治疗偏好的更深入理解有可能指导未来的治疗发展。
