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社区对痴呆症患者照料亲属的支持:运用理论领域框架的定性分析

Community support for caring relatives of people with dementia: qualitative analysis using the Theoretical Domains Framework.

作者信息

Wittek Maren, Voß Henrike, Kiefer Anna, Wiloth Stefanie, Schmitt Eric

机构信息

Institute of Gerontology, Ruprecht-Karls-University of Heidelberg, Bergheimer Straße 20, 69115 Heidelberg, Germany.

出版信息

Z Gesundh Wiss. 2022 Aug 12:1-11. doi: 10.1007/s10389-022-01744-w.

DOI:10.1007/s10389-022-01744-w
PMID:35975189
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9371957/
Abstract

AIM

Although caring relatives of people with dementia are a mainstay of many care systems, the availability of support services for them within the municipal community shows deficiencies. Adopting the Theoretical Domains Framework (TDF) this study aims to investigate 1) which of the TDF domains adapted to gerontology show up in public dialogue, and 2) the results that public dialogues produce in terms of support services for caring relatives.

SUBJECT AND METHODS

The data consists of town hall meetings and focus groups from 14 municipal communities in Germany. Participants were caring relatives and stakeholders of the communities. A qualitative content analysis was conducted, focusing on the assessment of three TDF domains, namely , and as well as outcomes of care optimisation.

RESULTS

With regard to domain , it was evident that in every community there were actors aware of the situation and relevance of carers and their relatives. Only some actors mentioned for optimising the care of the target group. The is often addressed through statements about incomplete requirements.

CONCLUSION

Overall, a relation between the discussion about the domains in public dialogues and changes in supporting carers of people with dementia can be assumed. The results indicate that an increased discussion about the domains within town hall meetings influences the actors and their statements with regard to the improvement of support services for caring relatives of people with dementia. Since the domains were not developed exclusively for the outlined context, this approach can also be applied to other areas of care.

SUPPLEMENTARY INFORMATION

The online version contains supplementary material available at 10.1007/s10389-022-01744-w.

摘要

目的

尽管痴呆症患者的亲属是许多护理系统的支柱,但市政社区内为他们提供的支持服务存在不足。本研究采用理论领域框架(TDF),旨在调查1)适用于老年医学的TDF领域中哪些出现在公共对话中,以及2)公共对话在为亲属护理提供支持服务方面产生的结果。

对象与方法

数据包括德国14个市政社区的市政厅会议和焦点小组。参与者是亲属护理人员和社区利益相关者。进行了定性内容分析,重点评估TDF的三个领域,即以及护理优化的结果。

结果

关于领域,很明显在每个社区都有行为者意识到护理人员及其亲属的情况和相关性。只有一些行为者提到了优化目标群体护理的问题。通常通过关于不完整需求的陈述来解决。

结论

总体而言,可以假设公共对话中关于这些领域的讨论与痴呆症患者护理人员支持方面的变化之间存在关联。结果表明,市政厅会议中对这些领域的讨论增加会影响行为者及其关于改善痴呆症患者亲属护理支持服务的陈述。由于这些领域并非专门针对上述背景而制定,这种方法也可应用于其他护理领域。

补充信息

在线版本包含可在10.1007/s10389-022-01744-w获取的补充材料。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c9f/9371957/98741e1105d9/10389_2022_1744_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c9f/9371957/eff048fde98a/10389_2022_1744_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c9f/9371957/3a10e14bada0/10389_2022_1744_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c9f/9371957/98741e1105d9/10389_2022_1744_Fig3_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c9f/9371957/eff048fde98a/10389_2022_1744_Fig1_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c9f/9371957/3a10e14bada0/10389_2022_1744_Fig2_HTML.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8c9f/9371957/98741e1105d9/10389_2022_1744_Fig3_HTML.jpg

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本文引用的文献

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[Care for family carers of people with dementia in municipal communities during the pandemic: A Qualitative Study].疫情期间城市社区中痴呆症患者家庭照料者的照护:一项定性研究
Pflege. 2023 Jun;36(3):129-138. doi: 10.1024/1012-5302/a000915. Epub 2022 Oct 21.
2
Creating Dementia-Friendly Communities for Social Inclusion: A Scoping Review.创建促进社会包容的痴呆友好型社区:一项范围综述
Gerontol Geriatr Med. 2021 May 12;7:23337214211013596. doi: 10.1177/23337214211013596. eCollection 2021 Jan-Dec.
3
[The method of "town hall talks": a study protocol].
["市政厅谈话法":一项研究方案]
Z Gerontol Geriatr. 2021 Dec;54(8):775-780. doi: 10.1007/s00391-020-01788-1. Epub 2020 Sep 30.
4
COVID-19's Impact on Women: A Stakeholder-Engagement Approach to Increase Public Awareness Through Virtual Town Halls.COVID-19 对女性的影响:通过虚拟市政厅提高公众意识的利益相关者参与方法。
J Public Health Manag Pract. 2020 Nov/Dec;26(6):534-538. doi: 10.1097/PHH.0000000000001249.
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Family-Centered Information Dissemination: A Multidisciplinary Virtual COVID-19 "Town Hall".以家庭为中心的信息传播:多学科虚拟 COVID-19“市政厅”。
Otolaryngol Head Neck Surg. 2020 Nov;163(5):929-930. doi: 10.1177/0194599820935419. Epub 2020 Jun 9.
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["Everything changes"-Everyday Life with dementia from the caregivers' perspective].["一切都变了”——从照顾者角度看痴呆症患者的日常生活]
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Critical comments mediate the association between carer distress and psychological symptoms in persons recently diagnosed with dementia.批评性评论介导了近期被诊断为痴呆症患者的照顾者困扰与心理症状之间的关联。
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Dementia Friendly Communities in England: A scoping study.英格兰的痴呆症友好社区:一项范围界定研究。
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Involvement of people with dementia in raising awareness and changing attitudes in a dementia friendly community pilot project.痴呆症患者参与一个友好型痴呆症社区试点项目中的提高认知和改变态度活动。
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Contextual Exploration of a New Family Caregiver Support Concept for Geriatric Settings Using a Participatory Health Research Strategy.基于参与式健康研究策略的老年环境中新的家庭护理人员支持概念的语境探索。
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