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自闭症谱系障碍中的种族和民族差异:对护理的影响。

Racial and Ethnic Disparities in Autism Spectrum Disorder: Implications for Care.

机构信息

Nell Hodgson Woodruff School of Nursing, Emory University, 1520 Clifton Road, Atlanta, GA 30322, USA.

Division of Autism and Related Disorders, Department of Pediatrics, Emory University School of Medicine, Infant Toddler Clinical Research Operations, Infant Toddler Community Outreach Research Core, Marcus Autism Center, Children's Healthcare of Atlanta, 1920 Briarcliff Road, Atlanta, GA 30329, USA.

出版信息

Nurs Clin North Am. 2022 Sep;57(3):489-499. doi: 10.1016/j.cnur.2022.04.014. Epub 2022 Jul 21.

DOI:10.1016/j.cnur.2022.04.014
PMID:35985735
Abstract

Autism spectrum disorder (ASD) is a complex neurodevelopmental disorder characterized by difficulties with social interaction and communication and the presence of restrictive and repetitive behavior. Individuals with ASD, particularly those from diverse racial and ethnic backgrounds, are at higher risk of certain health conditions and mortality over the lifespan. Disparities in timing of diagnosis, access to services, and quality of care have a significant impact on the trajectory of individuals on the autism spectrum. Health care providers and law enforcement officers often interact with individuals with ASD and need adequate preparation to provide person-centered care to this vulnerable population.

摘要

自闭症谱系障碍(ASD)是一种复杂的神经发育障碍,其特征是社交互动和沟通困难,以及存在限制和重复行为。自闭症患者,尤其是来自不同种族和族裔背景的患者,在整个生命周期中面临某些健康状况和死亡率较高的风险。诊断时机、服务获取和护理质量方面的差异对自闭症谱系个体的轨迹有重大影响。医疗保健提供者和执法人员经常与自闭症患者互动,需要充分准备,为这一弱势群体提供以人为本的护理。

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