Vu Megan, Mangal Rohan, Stead Thor, Lopez-Ortiz Carlos, Ganti Latha
Trinity Preparatory School, Winter Park, FL, USA.
University of Miami, Miller School of Medicine, Miami, FL, USA.
Health Psychol Res. 2022 Aug 20;10(3):37454. doi: 10.52965/001c.37454. eCollection 2022.
BACKGROUND/OBJECTIVE: First discovered by Alois Alzheimer in 1906, Alzheimer's disease (AD) has become a growing global health concern with numerous implications for individuals and modern society. As patients' symptoms of dementia continue to worsen, they gradually grow more limited in their independence. As a result, family members and close acquaintances often become caregivers for the patient and become more involved in maintaining the patient's lifestyle. The authors of this research sought to study what motivates caregivers to look after AD patients and the impact of AD on their lifestyles and physical, mental, and social health.
The authors crafted a survey of fourteen questions and collected data from 200 caregivers regarding AD's impact on their physical, emotional, and social health along with their key demographic and background information (e.g. whether or not they are a caregiver for a patient with AD).
The results indicate that most AD caregivers are family members (78%). AD often strains the caregiver's relationship with the patient (47.5%), and 58% of participating caregivers report extreme stress levels while 65% realize it is incredibly difficult to take care of a patient. Because of the increased levels of stress, 47% of participating caregivers sleep less; 43% feel more isolated from their family; and, 35.5% did not try to get help from others. Love and a strong sense of duty seem to be the primary motivation for caregivers to take care of a patient. Worry for the patient (50%), financial worries (12.5%), lack of medical experience (10.5%), and their own health (10.5%) seem to be the primary stressors for caregivers. Caregivers rely on numerous support systems and coping mechanisms, with physical activity (54.5%) and increased alcohol and marijuana usage (35.5%) the most frequent.
Although caregivers have support systems and found coping methods that would alleviate their burden of caring for a patient with AD, the clear negative impact AD has on caregivers affects their physical, mental, and social health. As there is currently no cure for AD, compassion and greater support for caregivers are necessary.
背景/目的:1906年由阿洛伊斯·阿尔茨海默首次发现,阿尔茨海默病(AD)已成为全球日益关注的健康问题,对个人和现代社会有着诸多影响。随着患者痴呆症状不断恶化,他们的独立性逐渐受限。因此,家庭成员和亲密熟人常常成为患者的照料者,并更多地参与维持患者的生活方式。本研究的作者试图探究是什么促使照料者照顾AD患者,以及AD对他们生活方式、身心健康和社会健康的影响。
作者精心设计了一份包含14个问题的调查问卷,并从200名照料者那里收集了关于AD对其身体、情感和社会健康的影响以及他们的关键人口统计学和背景信息(例如,他们是否是AD患者的照料者)的数据。
结果表明,大多数AD照料者是家庭成员(78%)。AD常常使照料者与患者的关系紧张(47.5%),58%的参与调查的照料者报告压力极大,65%的人意识到照顾患者极其困难。由于压力增加,47%的参与调查的照料者睡眠减少;43%的人感觉与家人更加疏远;35.5%的人没有向他人求助。爱和强烈的责任感似乎是照料者照顾患者的主要动机。对患者的担忧(50%)、经济担忧(12.5%)、缺乏医疗经验(10.5%)以及自身健康问题(10.5%)似乎是照料者的主要压力源。照料者依赖多种支持系统和应对机制,其中体育活动(54.5%)以及增加饮酒和使用大麻(35.5%)最为常见。
尽管照料者有支持系统并找到了减轻照顾AD患者负担的应对方法,但AD对照料者明显的负面影响会影响他们的身心健康和社会健康。由于目前尚无治愈AD的方法,因此需要给予照料者更多同情和支持。