Pace University, College of Health Professions, 163 William Street, 5th Floor, New York, NY 10025, USA.
Geriatr Nurs. 2019 May-Jun;40(3):257-263. doi: 10.1016/j.gerinurse.2018.10.015. Epub 2018 Nov 29.
Despite the rising prevalence of Alzheimer's disease (AD), there is limited systematic evidence about disease specific decisions. The aim of this qualitative descriptive study was to identify decisions across the AD trajectory using focus groups of past and present caregivers. Qualitative content analysis revealed three main categories with corresponding categories and sub-categories. Main Category One-Decisions pertaining to self-yielded two categories: decision pertaining to the offering of self and care for the caregiver. Main Category Two-Decisions pertaining to the patient-yielded three categories: decisions about care and treatment, living arrangements, and protecting the patient from harm. Main Category Three-Communication and relationships in decisions-yielded two categories: navigation and negotiations. The results of this study will inform healthcare providers and caregivers as they work together to anticipate, prepare, and plan for care management decisions over the AD trajectory.
尽管阿尔茨海默病（AD）的患病率不断上升，但关于特定疾病的决策的系统证据有限。本定性描述性研究的目的是使用过去和现在的护理人员的焦点小组来确定 AD 轨迹上的决策。定性内容分析揭示了三个主要类别，以及相应的类别和子类别。主要类别一-与自我相关的决策分为两类：与自我提供和护理人员自我护理相关的决策。主要类别二-与患者相关的决策分为三类：关于护理和治疗、生活安排以及保护患者免受伤害的决策。主要类别三-决策中的沟通和关系分为两类：导航和协商。本研究的结果将为医疗保健提供者和护理人员提供信息，因为他们共同努力预测、准备和规划 AD 轨迹上的护理管理决策。
