Department of Sociology, University of Manchester, Manchester, UK.
Sociol Health Illn. 2022 Dec;44 Suppl 1(Suppl 1):106-123. doi: 10.1111/1467-9566.13517. Epub 2022 Aug 24.
Mental health service users in the UK have become increasingly involved in research over the last 2 decades partly as a consequence of research governance. Ethnic minority service users, however, point to power imbalances stemming from marginalisation and discrimination creating barriers to knowledge co-production (Kalathil, J. (2013). Hard to reach? Racialised groups and mental health service user involvement.). Heavily influenced by Freire's liberatory education, participatory action research (PAR) repoliticises participation where those most affected by injustice are central in both producing knowledge about injustice and implementing solutions. Ethnic minority people with lived experience of 'severe mental illness' ('the racialised mad') were appointed as coresearchers to work with academic researchers on a qualitative study exploring ethnic inequalities in 'severe mental illness'. Drawing on Foucault's notion of power as relational, we focus on three key aspects of productive power: (1) relational engagement and reciprocity, (2) positioning coresearchers as authentic researchers and (3) adopting an ethic of care, to explore complicity and resistance in reproducing hierarchies of knowledge and power when attempting to create and sustain a PAR process for collective analysis, action and solidarity. We utilise retrospective and recorded reflections over the course of the project. Finally, we discuss the ethical and methodological implications for contemporary sociological research into health and illness.
在过去的 20 年里,由于研究治理的原因,英国的心理健康服务使用者越来越多地参与到研究中来。然而,少数族裔服务使用者指出,边缘化和歧视造成的权力失衡,为知识共同创造(Kalathil,J.(2013)。难以接触?种族化群体和心理健康服务用户的参与)制造了障碍。受弗莱雷解放教育的强烈影响,参与式行动研究(PAR)使参与具有政治性,那些受不公正影响最大的人在产生关于不公正的知识和实施解决方案方面处于核心地位。有“严重精神疾病”(“种族化的疯狂”)生活经历的少数族裔人士被任命为核心研究员,与学术研究人员合作进行一项定性研究,探索“严重精神疾病”方面的种族不平等。我们借鉴福柯的权力关系概念,重点关注产生权力的三个关键方面:(1)关系参与和互惠,(2)将核心研究员定位为真正的研究人员,以及(3)采用关爱伦理,探讨在试图创建和维持 PAR 流程以进行集体分析、行动和团结时,在复制知识和权力的等级制度方面的共谋和抵制。我们在项目过程中利用回顾性和记录性反思。最后,我们讨论了当代健康和疾病社会学研究的伦理和方法学影响。