Royal College of Surgeons - School of Postgraduate Studies, Dublin, Ireland.
University College Dublin, School of Psychology, Dublin, Ireland.
J Intellect Disabil Res. 2022 Nov;66(11):833-852. doi: 10.1111/jir.12973. Epub 2022 Aug 30.
Complicated grief has been identified as a phenomenon in the general population, and there is an increasing body of research investigating complicated grief in people with intellectual disability. The aim of this study is to synthesise this existing knowledge from research published between 1999 and 2022.
A structured systematic review using PRISMA guidelines was conducted, which searched three commonly used databases (Medline, PsycINFO and CINAHL) for research on the topic of bereavement and intellectual disability. The articles identified in this search were screened to identify those that addressed the issue of 'complicated grief', with all abstracts and subsequent full texts reviewed by two researchers.
In total, 179 abstracts were initially identified, with 34 articles eligible for full text screening and 18 papers reaching criteria for inclusion. Data relating to the studies' objectives were extracted under the headings of definition, defining principles, signs and symptoms, risk factors and treatments for complicated grief in intellectual disability. Thematic analysis of the extracted data was performed to identify key themes.
This review highlights that people with intellectual disability are likely to experience complicated grief reactions and that complicated grief is both underestimated and a clinically significant condition for people with intellectual disability. Future research should work to clarify diagnostic criteria and identify appropriate interventions.
复杂型悲伤已被确定为普通人群中的一种现象，越来越多的研究开始调查智障人群中的复杂型悲伤。本研究旨在综合自 1999 年至 2022 年发表的研究中现有的相关知识。
采用 PRISMA 指南进行了结构化的系统综述，在 Medline、PsycINFO 和 CINAHL 这三个常用数据库中搜索了与丧亲主题相关的研究。通过筛选，确定了那些涉及“复杂型悲伤”问题的文章，并由两位研究人员对所有摘要和后续全文进行了审查。
最初共确定了 179 篇摘要，有 34 篇文章符合全文筛选标准，有 18 篇文章符合纳入标准。从研究目标的数据中提取了有关复杂型悲伤在智障人群中的定义、定义原则、迹象和症状、风险因素和治疗等方面的信息。对提取的数据进行了主题分析，以确定关键主题。
本综述强调，智障人群可能会经历复杂型悲伤反应，而且复杂型悲伤既被低估，也是智障人群的一种临床显著状况。未来的研究应致力于明确诊断标准并确定适当的干预措施。
