家庭照顾者照顾中国脑瘫儿童的体验：一项定性描述性研究。
Family Caregivers' Experiences of Caring for Children With Cerebral Palsy in China: A Qualitative Descriptive Study.
机构信息
Children's Hospital of Soochow University, Suzhou, China.
出版信息
Inquiry. 2022 Jan-Dec;59:469580221121510. doi: 10.1177/00469580221121510.
Abstract
This study aimed to investigate family caregivers' experiences of caring for children with cerebral palsy in China. This study used a descriptive qualitative design. We selected 18 family caregivers from 3 children's hospitals in Jiangsu Province, China, using a purposive sampling method. The following 5 themes emerged as needs of family caregivers' experiences of caring for children with cerebral palsy: overall responsibility, being alone, exhaustion from caring, being a prisoner of life, and uncertainty regarding the future. The findings of our research contribute to a better understanding of the life situation of family caregivers of children with cerebral palsy as we identify the difficulties they experience as well as their specific needs.
摘要
本研究旨在探讨中国脑瘫儿童家庭照顾者的照顾经验。本研究采用描述性定性设计。我们使用目的抽样法，从中国江苏省的 3 家儿童医院中选择了 18 名家庭照顾者。以下 5 个主题是脑瘫儿童家庭照顾者照顾经验的需求：全面责任、孤独、照顾疲惫、生活囚徒和对未来的不确定性。我们研究的结果有助于更好地了解脑瘫儿童家庭照顾者的生活状况，因为我们确定了他们所经历的困难以及他们的具体需求。
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