Children's Hospital of Soochow University, Suzhou, China.
Nurs Open. 2023 Feb;10(2):817-827. doi: 10.1002/nop2.1350. Epub 2022 Aug 30.
To describe the nursing experiences and care needs of family caregivers caring for neonates with enterostomies in China.
A qualitative study.
We conducted semi-structured interviews with family caregivers who care for neonates undergoing enterostomy. Family caregivers were selected using a purposive sampling method from three children's hospitals until no new data were generated (N = 26). Data analysis applied the thematic analysis method. The caregivers' experiences were described using qualitative content analysis.
The experience of family caregivers was described as growing in adaptation, where five main themes emerged: (1) complex emotional responses; (2) uncertainty about everything; (3) lack of confidence, anxiety and helplessness; (4) eagerness for professional support; (5) active adaptation, gain-harvest and gain-growth. These findings increased understanding and added knowledge on this topic that is rarely studied in China. Healthcare authorities and professionals should recognize and understand the lives and situations of family caregivers (whose neonates undergo enterostomy) to better identify their difficulties and needs.
描述中国肠造口新生儿家庭照顾者的护理经验和护理需求。
定性研究。
我们对接受肠造口术的新生儿的家庭照顾者进行了半结构化访谈。家庭照顾者采用目的抽样法，从 3 家儿童医院中选取，直到没有新的数据产生（N=26）。数据分析采用主题分析方法。使用定性内容分析描述照顾者的经验。
家庭照顾者的体验被描述为不断适应，出现了五个主要主题：（1）复杂的情绪反应；（2）对一切都不确定；（3）缺乏信心、焦虑和无助；（4）渴望得到专业支持；（5）积极适应、收获和成长。这些发现增加了对这一在中国很少研究的主题的理解和认识。卫生保健当局和专业人员应认识和了解接受肠造口术的新生儿家庭照顾者的生活和情况，以便更好地确定他们的困难和需求。
