Centre for Primary Care, Wolfson Institute of Population Health, Barts and the London School of Medicine and Dentistry, Queen Mary University of London, London, England.
School of Nursing and Midwifery, Institute of Clinical Sciences, University of Birmingham, Birmingham, UK.
J Cancer Surviv. 2023 Dec;17(6):1780-1798. doi: 10.1007/s11764-022-01251-7. Epub 2022 Sep 6.
A "cancer care review" (CCR) is a conversation between a patient recently diagnosed with cancer and primary care practitioner soon after a diagnosis of cancer in the UK. This scoping review aimed to identify: methodology and validated outcome measures used to evaluate CCRs, the impact of CCRs on quality of life or symptoms, and the views of patients, their carers and healthcare professionals on CCRs.
A scoping review was performed and five databases (MEDLINE, Embase, PsychINFO, Scopus, Web of Science, Google Scholar) were searched systematically from January 2000 to March 2022.
Of 4133 articles, ten met the inclusion criteria. These included surveys, qualitative research on stakeholders' views and a small study evaluating group consultation CCRs. There were no studies on methodology to evaluate CCRs or the impact of CCRs on patient quality of life or symptoms. Some primary care professionals felt CCRs were a tick-box exercise, and that they had inadequate time to deliver care, compounded by inadequate primary-secondary care coordination and lack of expertise which was echoed by patients. Interviews with patients found few recalled CCRs and those that recalled CCRs did, did not find them particularly helpful. Partners of patients would welcome CCRs to raise personal health concerns and remain updated on patient care.
Further studies should identify the role that stakeholders believe they should have in CCRs, improve care coordination between primary care and secondary care and how to support caregivers.
There is currently insufficient evidence to support the use of CCRs in general practice.
“癌症护理审查”(CCR)是英国患者在确诊癌症后不久与初级保健医生之间的一次对话。本范围界定审查旨在确定:用于评估 CCR 的方法和经过验证的结果测量指标、CCR 对生活质量或症状的影响,以及患者、其照顾者和医疗保健专业人员对 CCR 的看法。
进行了范围界定审查,并系统地搜索了五个数据库(MEDLINE、Embase、PsychINFO、Scopus、Web of Science、Google Scholar),时间从 2000 年 1 月到 2022 年 3 月。
在 4133 篇文章中,有 10 篇符合纳入标准。这些包括对利益相关者观点的调查、定性研究以及一项评估小组咨询 CCR 的小型研究。没有关于评估 CCR 的方法或 CCR 对患者生活质量或症状影响的研究。一些初级保健专业人员认为 CCR 只是一种形式上的练习,他们没有足够的时间提供护理,加上初级保健和二级保健之间的协调不足以及缺乏专业知识,这与患者的观点相呼应。对患者进行的访谈发现,很少有患者记得 CCR,而那些记得 CCR 的患者也并不觉得它们特别有帮助。患者的伴侣会欢迎 CCR,以提出个人健康问题并了解患者的护理情况。
进一步的研究应确定利益相关者认为他们在 CCR 中应发挥的作用,改善初级保健和二级保健之间的护理协调,并研究如何支持照顾者。
目前没有足够的证据支持 CCR 在一般实践中的使用。