UCL Research Department of Epidemiology & Public Health, 1-19 Torrington Place, London, WC1E 6BT, UK.
Department of Primary Care and Population Health, Upper 3rd Floor, Royal Free Hospital, Rowland Hill Street, London, NW3 2PF, UK.
J Cancer Educ. 2021 Oct;36(5):899-908. doi: 10.1007/s13187-020-01941-9. Epub 2021 Jan 25.
Cancer, and the complex nature of treatment, has a profound impact on lives of patients and their families. Subsequently, cancer patients have a wide range of needs. This study aims to identify and synthesise cancer patients' views about areas where they need support throughout their care. A systematic search of the literature from PsycInfo, Embase and Medline databases was conducted, and a narrative. Synthesis of results was carried out using the Corbin & Strauss "3 lines of work" framework. For each line of work, a group of key common needs were identified. For illness-work, the key needs idenitified were; understanding their illness and treatment options, knowing what to expect, communication with healthcare professionals, and staying well. In regards to everyday work, patients wanted to maintain a sense of normalcy and look after their loved ones. For biographical work, patients commonly struggled with the emotion impact of illness and a lack of control over their lives. Spiritual, sexual and financial problems were less universal. For some types of support, demographic factors influenced the level of need reported. While all patients are unique, there are a clear set of issues that are common to a majority of cancer journeys. To improve care, these needs should be prioritised by healthcare practitioners.
癌症及其复杂的治疗性质，对患者及其家庭的生活产生了深远的影响。因此，癌症患者有广泛的需求。本研究旨在确定并综合癌症患者在整个治疗过程中需要支持的领域的观点。对 PsycInfo、Embase 和 Medline 数据库中的文献进行了系统检索，并使用 Corbin & Strauss 的“3 条工作线”框架对结果进行了叙述性综合。对于每条工作线，都确定了一组关键的共同需求。在疾病工作方面，确定的关键需求包括：了解自己的疾病和治疗选择、了解预期情况、与医疗保健专业人员沟通以及保持健康。在日常生活工作方面，患者希望保持正常状态并照顾自己的亲人。在传记工作方面，患者普遍受到疾病情绪影响和对生活失去控制的困扰。精神、性和财务问题则不那么普遍。对于某些类型的支持，人口统计学因素影响了报告的需求水平。虽然每个患者都是独特的，但大多数癌症患者都存在一系列共同的问题。为了改善护理，医疗保健从业者应优先考虑这些需求。
